Judith Graham, Author at ºÚÁϳԹÏÍø News ºÚÁϳԹÏÍø News produces in-depth journalism on health issues and is a core operating program of KFF. Wed, 15 Apr 2026 23:56:43 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.5 /wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=32 Judith Graham, Author at ºÚÁϳԹÏÍø News 32 32 161476233 An Age-Old Fear Grows More Common: ‘I’m Going To Die Alone’ /aging/aging-fear-dying-alone-single-childless-widowhood-divorce/ Thu, 16 Oct 2025 09:00:00 +0000 /?post_type=article&p=2094660 This summer, at dinner with her best friend, Jacki Barden raised an uncomfortable topic: the possibility that she might die alone.

“I have no children, no husband, no siblings,” Barden remembered saying. “Who’s going to hold my hand while I die?”

Barden, 75, never had children. She’s lived on her own in western Massachusetts since her husband passed away in 2003. “You hit a point in your life when you’re not climbing up anymore, you’re climbing down,” she told me. “You start thinking about what it’s going to be like at the end.”

It’s something that many older adults who live alone — a growing population, — wonder about. Many have family and friends they can turn to. But some have no spouse or children, have relatives who live far away, or are estranged from remaining family members. Others have lost dear friends they once depended on to advanced age and illness.

More than 15 million people 55 or older don’t have a spouse or biological children; nearly 2 million have no family members at all.

A portrait of a senior woman with short, curly white hair wearing a red-striped shirt and smiling broadly.
Jacki Barden has prepared thoroughly for the end of her life. Her paperwork is in order and funeral arrangements are made. But she says she’s not sure anyone will be with her when she dies. (Rosemarie Patterson)

Still other older adults have become isolated due to sickness, frailty, or disability. Between , who do not live in nursing homes, aren’t in regular contact with other people. And research shows that isolation becomes even more common as death draws near.

Who will be there for these solo agers as their lives draw to a close? How many of them will die without people they know and care for by their side?

Unfortunately, we have no idea: National surveys don’t capture information about who’s with older adults when they die. But dying alone is a growing concern as more seniors age on their own after widowhood or divorce, or remain single or childless, according to demographers, medical researchers, and physicians who care for older people.

“We’ve always seen patients who were essentially by themselves when they transition into end-of-life care,” said Jairon Johnson, the medical director of hospice and palliative care for Presbyterian Healthcare Services, the largest health care system in New Mexico. “But they weren’t as common as they are now.”

Attention to the potentially fraught consequences of dying alone surged during the covid-19 pandemic, when families were shut out of hospitals and nursing homes as older relatives passed away. But it’s largely fallen off the radar since then.

For many people, including health care practitioners, the prospect provokes a feeling of abandonment. “I can’t imagine what it’s like, on top of a terminal illness, to think I’m dying and I have no one,” said Sarah Cross, an assistant professor of palliative medicine at Emory University School of Medicine.

Cross’ research shows that more people die at home now than in any other setting. While hundreds of hospitals have “No One Dies Alone” programs, which match volunteers with people in their final days, similar services aren’t generally available for people at home.

Alison Butler, 65, is an end-of-life doula who lives and works in the Washington, D.C., area. She helps people and those close to them navigate the dying process. She also has lived alone for 20 years. In a lengthy conversation, Butler admitted that being alone at life’s end seems like a form of rejection. She choked back tears as she spoke about possibly feeling her life “doesn’t and didn’t matter deeply” to anyone.

A portrait of a woman with short grey hair and glasses.
Alison Butler has lived alone for 20 years, since her divorce. “Solo agers tend to feel forgotten,” she says. “That makes the anxiety around end-of-life even worse for solo agers.” (Kathleen Dreier)

Without reliable people around to assist terminally ill adults, there’s also an elevated risk of self-neglect and deteriorating well-being. Most seniors don’t have enough money to pay for assisted living or help at home if they lose the ability to shop, bathe, dress, or move around the house.

Nearly $1 trillion in cuts to Medicaid planned under President Donald Trump’s tax and spending law, previously known as the “One Big Beautiful Bill Act,” probably will , economists and policy experts predict. Medicare, the government’s health insurance program for seniors, generally doesn’t pay for home-based services; Medicaid is the primary source of this kind of help for people who don’t have financial resources. But states may be forced to eviscerate Medicaid home-based care programs as federal funding diminishes.

“I’m really scared about what’s going to happen,” said Bree Johnston, a geriatrician and the director of palliative care at Skagit Regional Health in northwestern Washington state. She predicted that more terminally ill seniors who live alone will end up dying in hospitals, rather than in their homes, because they’ll lack essential services.

“Hospitals are often not the most humane place to die,” Johnston said.

While is an alternative paid for by Medicare, it too often falls short for terminally ill older adults who are alone. (Hospice serves people whose life expectancy is six months or less.) For one thing, hospice is underused: Fewer than half of older adults under age 85 take advantage of hospice services.

Also, “many people think, wrongly, that hospice agencies are going to provide person power on the ground and help with all those functional problems that come up for people at the end of life,” said Ashwin Kotwal, an associate professor of medicine in the division of geriatrics at the University of California-San Francisco School of Medicine.

Instead, agencies usually provide only intermittent care and rely heavily on family caregivers to offer needed assistance with activities such as bathing and eating. Some hospices won’t even accept people who don’t have caregivers, Kotwal noted.

That leaves hospitals. If seniors are lucid, staffers can talk to them about their priorities and walk them through medical decisions that lie ahead, said Paul DeSandre, the chief of palliative and supportive care at Grady Health System in Atlanta.

If they’re delirious or unconscious, which is often the case, staffers normally try to identify someone who can discuss what this senior might have wanted at the end of life and possibly serve as a surrogate decision-maker. Most states have laws specifying default surrogates, usually family members, for people who haven’t named decision-makers in advance.

If all efforts fail, the hospital will go to court to petition for guardianship, and the patient will become a ward of the state, which will assume legal oversight of end-of-life decision-making.

In extreme cases, when no one comes forward, someone who has died alone may be classified as “unclaimed” and buried in a common grave. This, too, is an increasingly common occurrence, according to “The Unclaimed: Abandonment and Hope in the City of Angels,” a book about this phenomenon, published last year.

Shoshana Ungerleider, a physician, founded End Well, an organization committed to improving end-of-life experiences. She suggested people make concerted efforts to identify seniors who live alone and are seriously ill early and provide them with expanded support. Stay in touch with them regularly through calls, video, or text messages, she said.

And don’t assume all older adults have the same priorities for end-of-life care. They don’t.

Barden, the widow in Massachusetts, for instance, has focused on preparing in advance: All her financial and legal arrangements are in order and funeral arrangements are made.

“I’ve been very blessed in life: We have to look back on what we have to be grateful for and not dwell on the bad part,” she told me. As for imagining her life’s end, she said, “it’s going to be what it is. We have no control over any of that stuff. I guess I’d like someone with me, but I don’t know how it’s going to work out.”

A Zoom photo of a senior woman with short white hair, glasses, and a pink shirt.
Elva Roy cherishes her independence and doesn’t want anyone with her at the end of her life. She’s considering medically assisted death if she becomes terminally ill.

Some people want to die as they’ve lived — on their own. Among them is 80-year-old Elva Roy, founder of Age-Friendly Arlington, Texas, who has lived alone for 30 years after two divorces.

When I reached out, she told me she’d thought long and hard about dying alone and is toying with the idea of medically assisted death, perhaps in Switzerland, if she becomes terminally ill. It’s one way to retain a sense of control and independence that’s sustained her as a solo ager.

“You know, I don’t want somebody by my side if I’m emaciated or frail or sickly,” Roy said. “I would not feel comforted by someone being there holding my hand or wiping my brow or watching me suffer. I’m really OK with dying by myself.”

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/aging-fear-dying-alone-single-childless-widowhood-divorce/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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I’m Moving Forward and Facing the Uncertainty of Aging /aging/navigating-aging-columnist-retires-faces-uncertainty/ Wed, 15 Jan 2025 10:00:00 +0000 /?post_type=article&p=1960724 It takes a lot of courage to grow old.

I’ve come to appreciate this after conversations with hundreds of older adults over the past eight years for nearly 200 “Navigating Aging” columns.

Time and again, people have described what it’s like to let go of certainties they once lived with and adjust to new circumstances.

These older adults’ lives are filled with change. They don’t know what the future holds except that the end is nearer than it’s ever been.

And yet, they find ways to adapt. To move forward. To find meaning in their lives. And I find myself resolving to follow this path as I ready myself for retirement.

Patricia Estess, 85, of the Brooklyn borough of New York City spoke eloquently about the unpredictability of later life when I reached out to her as I reported a series of columns on older adults who live alone, sometimes known as “solo agers.”

Estess had taken a course on solo aging. “You realize that other people are in the same boat as you are,” she said when I asked what she had learned. “We’re all dealing with uncertainty.”

Consider the questions that older adults — whether living with others or by themselves — deal with year in and out: Will my bones break? Will my thinking skills and memory endure? Will I be able to make it up the stairs of my home, where I’m trying to age in place?

Will beloved friends and family members remain an ongoing source of support? If not, who will be around to provide help when it’s needed?

Will I have enough money to support a long and healthy life, if that’s in the cards? Will community and government resources be available, if needed?

It takes courage to face these uncertainties and advance into the unknown with a measure of equanimity.

“It’s a question of attitude,” Estess told me. “I have honed an attitude of: ‘I am getting older. Things will happen. I will do what I can to plan in advance. I will be more careful. But I will deal with things as they come up.’”

For many people, becoming old alters their sense of identity. They feel like strangers to themselves. Their bodies and minds aren’t working as they used to. They don’t feel the sense of control they once felt.

That requires a different type of courage — the courage to embrace and accept their older selves.

Marna Clarke, a photographer, spent more than a dozen years documenting her changing body and her life with her partner as they grew older. Along the way, she learned to view aging with new eyes.

“Now, I think there’s a beauty that comes out of people when they accept who they are,” she told me in 2022 when she was 82, just before her 93-year-old husband died.

A photo shows Marna Clarke resting her head on her partner's deathbed.
As her partner, Igor Sazevich, lay dying, Marna Clarke says, she “was talking to him and caressing him.” “Then I sat with him and held his very swollen hands,” she says. “Over and over again, I told him I loved him. I know he heard me.”

Arthur Kleinman, a Harvard professor who’s now 83, gained a deeper sense of soulfulness after caring for his beloved wife, who had dementia and eventually died, leaving him grief-stricken.

“We endure, we learn how to endure, how to keep going. We’re marked, we’re injured, we’re wounded. We’re changed, in my case for the better,” he told me when I interviewed him in 2019. He was referring to a newfound sense of vulnerability and empathy he gained as a caregiver.

Herbert Brown, 68, who lives in one of Chicago’s poorest neighborhoods, was philosophical when I met him at his apartment building’s annual barbecue in June.

“I was a very wild person in my youth. I’m surprised I’ve lived this long,” he said. “I never planned on being a senior. I thought I’d die before that happened.”

Truthfully, no one is ever prepared to grow old, including me. (I’m turning 70 in February.)

Chalk it up to denial or the limits of imagination. As May Sarton, who thought deeply about aging, put it so well: Old age is “a foreign country with an unknown language.” I, along with all my similarly aged friends, are surprised we’ve arrived at this destination.

For me, 2025 is a turning point. I’m retiring after four decades as a journalist. Most of that time, I’ve written about our nation’s enormously complex health care system. For the past eight years, I’ve focused on the unprecedented growth of the older population — the most significant demographic trend of our time — and its many implications.

In some ways, I’m ready for the challenges that lie ahead. In many ways, I’m not.

A senior man in a red and black zip up shirt sits on a chair and looks at the camera
Herbert Brown of Chicago says, “I never planned on being a senior. I thought I’d die before that happened.” (Judith Graham/ºÚÁϳԹÏÍø News)
A senior woman with white short hair and a purple turtleneck sweater looks at the camera smiling
Patricia Estess of Brooklyn, New York, says, “You realize that other people are in the same boat as you are. We’re all dealing with uncertainty.” (Patricia Estess)

The biggest unknown is what will happen to my vision. I have moderate macular degeneration in both eyes. Last year, I lost central vision in my right eye. How long will my left eye pick up the slack? What will happen when that eye deteriorates?

Like many people, I’m hoping scientific advances outpace the progression of my condition. But I’m not counting on it. Realistically, I have to plan for a future in which I might become partially blind.

It’ll take courage to deal with that.

Then, there’s the matter of my four-story Denver house, where I’ve lived for 33 years. Climbing the stairs has helped keep me in shape. But that won’t be possible if my vision becomes worse.

So my husband and I are taking a leap into the unknown. We’re renovating the house, installing an elevator, and inviting our son, daughter-in-law, and grandson to move in with us. Going intergenerational. Giving up privacy. In exchange, we hope our home will be full of mutual assistance and love.

There are no guarantees this will work. But we’re giving it a shot.

Without all the conversations I’ve had over all these years, I might not have been up for it. But I’ve come to see that “no guarantees” isn’t a reason to dig in my heels and resist change.

Thank you to everyone who has taken time to share your experiences and insights about aging. Thank you for your openness, honesty, and courage. These conversations will become even more important in the years ahead, as baby boomers like me make their way through their 70s, 80s, and beyond. May the conversations continue.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/navigating-aging-columnist-retires-faces-uncertainty/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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LGBTQ+ People Relive Old Traumas as They Age on Their Own /aging/lgbtq-aging-adults-going-it-alone-relive-trauma/ Tue, 24 Dec 2024 13:00:00 +0000 /?post_type=article&p=1937169 Bill Hall, 71, has been fighting for his life for 38 years. These days, he’s feeling worn out.

Hall contracted HIV, the virus that can cause AIDS, in 1986. Since then, he’s battled depression, heart disease, diabetes, non-Hodgkin lymphoma, kidney cancer, and prostate cancer. This past year, Hall has been hospitalized five times with dangerous infections and life-threatening internal bleeding.

But that’s only part of what Hall, a gay man, has dealt with. Hall was born into the Tlingit tribe in a small fishing village in Alaska. He was separated from his family at age 9 and sent to a government boarding school. There, he told me, he endured years of bullying and sexual abuse that “killed my spirit.”

A man wearing a vest with animal and feather designs on it over his checkered shirt stands and looks at the camera.
Bill Hall, who lives alone in Seattle, contracted HIV in 1986. Since then, he has battled depression, heart disease, diabetes, non-Hodgkin lymphoma, kidney cancer, and prostate cancer. This past year, he’s been hospitalized five times with potentially life-threatening medical crises. (Ernestine Grimm)

Because of the trauma, Hall said, he’s never been able to form an intimate relationship. He contracted HIV from anonymous sex at bath houses he used to visit. He lives alone in Seattle and has been on his own throughout his adult life.

“It’s really difficult to maintain a positive attitude when you’re going through so much,” said Hall, who works with Native American community organizations. “You become mentally exhausted.”

It’s a sentiment shared by many older LGBTQ+ adults — most of whom, like Hall, are trying to manage on their own.

Of the 3 million Americans over age 50 who identify as gay, bisexual, or transgender, about twice as many are single and living alone when compared with their heterosexual counterparts, according to the National Resource Center on LGBTQ+ Aging.

This slice of the older population is expanding rapidly. By 2030, the number of LGBTQ+ seniors is expected to double. Many won’t have partners and most won’t have children or grandchildren to help care for them, indicates.

They face a daunting array of problems, including higher-than-usual rates of anxiety and depression, chronic stress, disability, and chronic illnesses such as heart disease, according to numerous research studies. High rates of smoking, alcohol use, and drug use — all ways people try to cope with stress — contribute to poor health.

Keep in mind, this generation grew up at a time when every state outlawed same-sex relations and when the American Psychiatric Association identified homosexuality as a psychiatric disorder. Many were rejected by their families and their churches when they came out. Then, they endured the horrifying impact of the AIDS crisis.

“Dozens of people were dying every day,” Hall said. “Your life becomes going to support groups, going to visit friends in the hospital, going to funerals.”

It’s no wonder that LGBTQ+ seniors often withdraw socially and experience isolation more commonly than other older adults. “There was too much grief, too much anger, too much trauma — too many people were dying,” said Vincent Crisostomo, director of aging services for the San Francisco AIDS Foundation. “It was just too much to bear.”

In an AARP survey of 2,200 LGBTQ+ adults 45 or older this year, 48% said they felt isolated from others and 45% reported lacking companionship. Almost 80% reported being concerned about having adequate social support as they grow older.

Embracing aging isn’t easy for anyone, but it can be especially difficult for LGBTQ+ seniors who are long-term HIV survivors like Hall.

Of 1.2 million people in the United States, about half are over age 50. By 2030, that’s estimated to rise to 70%.

Christopher Christensen, 72, of Palm Springs, California, has been HIV-positive since May 1981 and is deeply involved with local organizations serving HIV survivors. “A lot of people living with HIV never thought they’d grow old — or planned for it — because they thought they would die quickly,” Christensen said.

Jeff Berry is executive director of the , an alliance of long-term HIV survivors. “Here people are who survived the AIDS epidemic, and all these years later their health issues are getting worse and they’re losing their peers again,” Berry said. “And it’s triggering this post-traumatic stress that’s been underlying for many, many years. Yes, it’s part of getting older. But it’s very, very hard.”

Being on their own, without people who understand how the past is informing current challenges, can magnify those difficulties.

“Not having access to supports and services that are both LGBTQ-friendly and age-friendly is a real hardship for many,” said Christina DaCosta, chief experience officer at , the nation’s largest and oldest organization for older LGBTQ+ adults.

An senior woman wearing a Batman t-shirt sits on a couch and looks at the camera and smiles gently.
Diedra Nottingham was kicked out of her house by her mother at age 14 and spent the next four years on the streets. Today, Nottingham lives alone in a one-bedroom apartment in Stonewall House, an LGBTQ+-friendly elder housing complex in New York City. (Julia Mitchem)
A senior Black man with a white and gray beard smiles at the camera.
Donald Bell, co-chair of the Illinois Commission on LGBTQ Aging, lives alone in a studio apartment in a subsidized LGBTQ+-friendly senior housing complex in Chicago. Bell has very little money, he says, because 30 years ago he left work as a higher-education administrator to care for his elderly parents, who had serious health issues. “The cost of health care bankrupted us,” he says. (Donald Bell)

Diedra Nottingham, a 74-year-old gay woman, lives alone in a one-bedroom apartment in Stonewall House, an LGBTQ+-friendly elder housing complex in New York City. “I just don’t trust people,“ she said. “And I don’t want to get hurt, either, by the way people attack gay people.”

When I first spoke to Nottingham in 2022, she described a post-traumatic-stress-type reaction to so many people dying of covid-19 and the fear of becoming infected. This was a common reaction among older people who are gay, bisexual, or transgender and who bear psychological scars from the AIDS epidemic.

Nottingham was kicked out of her house by her mother at age 14 and spent the next four years on the streets. The only sibling she talks with regularly lives across the country in Seattle. Four partners whom she’d remained close with died in short order in 1999 and 2000, and her last partner passed away in 2003.

When I talked to her in September, Nottingham said she was benefiting from weekly therapy sessions and time spent with a volunteer “friendly visitor” arranged by SAGE. Yet she acknowledged: “I don’t like being by myself all the time the way I am. I’m lonely.”

Donald Bell, a 74-year-old gay Black man who is co-chair of the Illinois Commission on LGBTQ Aging, lives alone in a studio apartment in subsidized LGBTQ+-friendly senior housing in Chicago. He spent 30 years caring for two elderly parents who had serious health issues, while he was also a single father, raising two sons he adopted from a niece.

Bell has very little money, he said, because he left work as a higher-education administrator to care for his parents. “The cost of health care bankrupted us,” he said. (According to SAGE, one-third of older LGBTQ+ adults live at or below 200% of the federal poverty level.) He has hypertension, diabetes, heart disease, and nerve damage in his feet. These days, he walks with a cane.

To his great regret, Bell told me, he’s never had a long-term relationship. But he has several good friends in his building and in the city.

“Of course I experience loneliness,” Bell said when we spoke in June. “But the fact that I am a Black man who has lived to 74, that I have not been destroyed, that I have the sanctity of my own life and my own person is a victory and something for which I am grateful.”

Now he wants to be a model to younger gay men and accept aging rather than feeling stuck in the past. “My past is over,” Bell said, “and I must move on.”

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/lgbtq-aging-adults-going-it-alone-relive-trauma/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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A Centenarian Thrives Living Alone, Active and Engaged /aging/centenarian-thrives-living-alone-older-adults/ Tue, 10 Dec 2024 10:00:00 +0000 “The future is here,” the email announced. Hilda Jaffe, then 88, was letting her children know she planned to sell the family home in Verona, New Jersey. She’d decided to begin life anew — on her own — in a one-bedroom apartment in Hell’s Kitchen in Manhattan.

Fourteen years later, Jaffe, now 102, still lives alone — just a few blocks away from the frenetic flashing lights and crowds that course through Times Square.

She’s the rarest of seniors: a centenarian who is sharp as a tack, who carries grocery bags in each hand when she walks back from her local market, and who takes city buses to see her physicians or attend a matinee at the Metropolitan Opera.

Jaffe cleans her own house, does her own laundry, manages her own finances, and stays in touch with a far-flung network of family and friends via email, WhatsApp, and Zoom. Her son, Richard Jaffe, 78, lives in San Jose, California. Her daughter, Barbara Vendriger, 75, lives in Tel Aviv.

She’s an extraordinary example of an older adult living by herself and thriving.

A photograph of a senior woman standing on the corner of a busy block in the Upper West Side of New York on a cold, but sunny day.
102-year-old Hilda Jaffe negotiates the streets of New York City without a walker or cane. She’s careful about watching the pavement so she doesn’t fall. (Jackie Molloy for ºÚÁϳԹÏÍø News)
A photo taken over the shoulder of a senior woman writing the crossword puzzle.
Jaffe does an acrostic word puzzle in her apartment on the 28th floor of a building in the heart of New York City. She enjoys doing various puzzles, and reading books and magazines. (Jackie Molloy for ºÚÁϳԹÏÍø News)
A photo of a senior woman pointing to pencil marks on a doorway.
Inside Jaffe’s home is a wall where she keeps the heights of all her great-grandchildren. Every time they visit, she sees how much they have grown since she last saw them. (Jackie Molloy for ºÚÁϳԹÏÍø News)

I’ve spoken with dozens of seniors this past year for a series of columns on older Americans living alone. Many struggle with health issues. Many are isolated and vulnerable. But a noteworthy slice of this growing group of seniors maintain a high degree of well-being.

What might account for this, particularly among people in the farthest reaches of old age?

Sofiya Milman is director of Human Longevity Studies at the Institute for Aging Research at Albert Einstein College of Medicine. She studies people known as “superagers” —95 and older. “As a group, they have a very positive outlook on life” and are notably resilient, like Jaffe, she told me.

Qualities associated with resilience in older adults include optimism and hopefulness, an ability to adapt to changing circumstances, meaningful relationships, community connections, and physical activity, according to a growing body of research on this topic.

Jaffe has those qualities in spades, along with a “can-do” attitude.

“I never expected to be 102. I’m as surprised as everybody else that I am here,” she said recently over lunch at a Chinese restaurant just steps from her 30-story apartment building.

Jaffe’s perspective on her longevity is unsentimental. She credits her genetic heritage, luck, and her commitment to “keep moving,” in that order. “You don’t work toward it: It happens. Every day, you get up and you’re a day older,” she said.

A photo of a senior woman wearing winter clothes while pushing a cart in a grocery store.
Jaffe shops at The Food Emporium, a market in easy walking distance from her apartment building in Hell’s Kitchen in New York City. (Jackie Molloy for ºÚÁϳԹÏÍø News)
An over-the-shoulder photograph of a senior woman's hands holding a grocery list.
Jaffe consults a shopping list at The Food Emporium. (Jackie Molloy for ºÚÁϳԹÏÍø News)

This matter-of-fact stance is characteristic of Jaffe’s approach to life. Asked to describe herself, she quickly responded “pragmatic.” That means having a clear-eyed view of what she can and can’t do and making adjustments as necessary.

Living alone suits her, she added, because she likes being independent and doing things her way. “If a problem comes up, I work it out,” Jaffe said. 

In this, she’s like other older adults who have come to terms with their “I’m on my own” status and, for the most part, are doing quite well. 

Still, Jaffe is unusual, to say the least. There are only 101,000 centenarians in the U.S., according to the most recent Census Bureau data. Of this small group, 15% live independently or operate independently while living with someone, according to Thomas Perls, the founder and director of the New England Centenarian Study, the largest study of centenarians in the world. (Jaffe is one of 2,500 centenarians participating in the study.)

About 20% of centenarians are, like Jaffe, free of physical or cognitive impairments, Perls said. An additional 15% have no age-related illnesses such as arthritis or heart disease.

Practically, that means Jaffe doesn’t know anybody like her. Nor do her physicians. “My primary care doctor says, ‘You’re the only centenarian who walks in without an assistant or a cane. You’re off the charts,’” Jaffe said, when I asked about her health.

She has only a few medical conditions — reflux, an occasional irregular heartbeat, osteoporosis, a touch of sciatica, a lung nodule that appeared and then disappeared. She monitors those conditions vigilantly, following her doctors’ advice to the letter.

Every day, Jaffe tries to walk 3,000 steps — outside if the weather is good or inside, making laps in her hallway, if the weather is bad. Her diet is simple: bread, cheese, and decaffeinated coffee for breakfast; a sandwich or eggs for lunch; often chicken and a vegetable or restaurant leftovers for dinner. She never smoked, doesn’t drink alcohol, and sleeps an average of eight hours each night.

A photo of a senior woman wearing winter clothes walking on the sidewalk in the Upper West Side of New York City.
When Jaffe goes to the grocery store, she carries a small list of items she knows she can carry back on her own. (Jackie Molloy for ºÚÁϳԹÏÍø News)

Even more important, Jaffe remains engaged with other people. She has subscriptions to the Metropolitan Opera, the New York Philharmonic, and a chamber music series. She participates in online events and regularly sees new exhibits at four of New York’s premier museums, where she has memberships. She’s in regular contact with family members and friends.

Jaffe also belongs to a book club at her synagogue on Manhattan’s Upper West Side and serves on the synagogue’s adult education committee. For more than a decade, she’s volunteered several times a week as a docent at the New York Public Library’s main branch on Fifth Avenue.

“Loneliness, it’s not an issue,” she said. “I have enough to do within my capability.”

On a recent Tuesday afternoon, I followed Jaffe as she led visitors from Mexico, England, Pittsburgh, and New Jersey through the library’s “Treasures” exhibit. She was a wealth of information about extraordinary objects such as a Gutenberg Bible from 1455 (one of the first books printed in Europe using movable type), Charles Dickens’ writing desk, and an enormous folio of John James Audubon’s “The Birds of America.” She spoke without notes, articulately.

When I asked about the future, Jaffe said she doesn’t worry about what comes next. She just lives day to day.

That change in perspective is common in later life. “Focusing on the present and experiencing the here and now becomes more important to older adults,” said Laura Carstensen, founding director of Stanford University’s Center on Longevity, who has studied emotional changes that accompany aging for decades. “As does savoring positive things in their lives.”

A photo of a senior woman wearing winter clothes picking up food from a deli counter.
The Food Emporium is a short walk from Jaffe’s apartment building. (Jackie Molloy for ºÚÁϳԹÏÍø News)

Carstensen’s research group was the first to show that older adults were more resilient emotionally during the covid-19 pandemic than young or middle-aged adults. “Older people are better able to cope with difficulties,” she said. In part, this is because of skills and perspective gained over the course of a lifetime. And, in part, it’s because “when we see our future as shorter, it feels more manageable.”

Jaffe certainly understands the value of facing forward and letting go of the past. Losing her husband, Gerald Jaffe, in 2005 after 63 years of marriage was hard, she admitted, but relinquishing her life and most of her belongings in New Jersey five years later was easy.

“It was enough. We had done what we had wanted to do there. I was 88 at that point and so many people were gone. The world had changed,” she told me. “I didn’t feel a sense of loss.”

“It was so exciting for me, being in New York,” she continued. “Every day you could do something — or nothing. This location couldn’t be better. The building is safe and well maintained, with lots of staff. Everything is here, close by: a market, the pharmacy, restaurants, buses. In a house in New Jersey, I would be isolated. Here, I look out the window and I see people.”

As for the future, who knows what that will hold? “My joke is I’m going to be done in by a bicycle delivery person cutting through the pedestrian crosswalk,” Jaffe said. Until that or something else happens, “I live in a state of surprise. Every day is a new day. I don’t take it for granted at all.”

A portrait of a senior woman smiling as she eats breakfast at a New York City diner.
Like many New Yorkers, Jaffe has a favorite lunch spot: the Westway Diner, in her neighborhood. Staffers there greet her by name. (Jackie Molloy for ºÚÁϳԹÏÍø News)

We’re eager to hear from readers about questions you’d like answered, problems you’ve been having with your care, and advice you need in dealing with the health care system. Visit  to submit your requests or tips.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/centenarian-thrives-living-alone-older-adults/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Resources Are Expanding for Older Adults on Their Own /aging/aging-alone-resources-older-adults-solo-agers/ Mon, 09 Dec 2024 10:00:00 +0000 Jeff Kromrey, 69, will sit down with his daughter the next time she visits and show her how to access his online accounts if he has an unexpected health crisis.

Gayle Williams-Brett, 69, plans to tackle a project she’s been putting off for months: organizing all her financial information.

Michael Davis, 71, is going to draft a living will and ask a close friend to be his health care surrogate and executor of his estate.

These seniors have been inspired to take these and other actions by an innovative course for such “solo agers”: Aging Alone Together, , a social services agency in New York City.

Most of them live alone, without a spouse, a partner, or adult children to help them manage as they grow older.

Until a few years ago, few resources were available for this growing slice of the older population.

Now, there are several Facebook groups for solo agers, as well as in-person groups springing up around the country, conferences and webinars, a national clearinghouse of resources, and an expanding array of books on the topic.

All address these seniors’ need to connect with other people, prevent isolation, and prepare for a future when they might become less robust, encounter more health issues, and need more assistance.

“Older adults who cannot rely on family members need to be very intentional about creating support systems and putting other plans in place,” said Ailene Gerhardt, a patient advocate in Boston who created the three years ago.

In a , AARP — which broadens the definition of older Americans to people 50 and older — examined those who live alone and don’t have living children. Ten percent of those 50 or older meet this definition, AARP estimates. An additional 11% have at least one living child but are estranged from them. And 13% have children who they believe can’t or won’t help them manage their finances and health care.

Preparing in isolation for the future can be daunting. “If solo agers don’t feel they have people to talk to as they craft their aging plan, they often will skip the whole process,” said Gerhardt, who endorses a group planning model for these seniors.

That’s the format Dorot has adopted for Aging Alone Together, which is available nationally online free of charge and in person in New York City. More than 1,000 people have participated in the program since it launched in 2021. Dorot is working with partners around the country to expand its reach.

The program consists of six 90-minute, interactive weekly sessions that focus on these seniors’ key concerns: building communities of support, figuring out where to live, completing advance care directives such as living wills, and getting financial and legal affairs in order.

One goal is to help participants identify their priorities and overcome the fear and hesitation that so many older adults feel when peering into their uncertain futures, said Claire Nisen, a Dorot staffer who runs the program. Another is to offer practical tools, advice, and resources that can spur people to action.

Yet another is to foster a sense of community that promotes a “can do” attitude. As Nisen said repeatedly when I took the course in September and October, “Solo aging doesn’t mean aging alone.”

That message resonated deeply with Williams-Brett, who lives with her severely disabled mother, 97, in a two-story brownstone in Brooklyn. Williams-Brett, who is divorced and never had children, expects to be on her own as she grows older. Her mother had a devastating stroke three years ago, and since then Williams-Brett has been her full-time caregiver.

Overwhelmed by everything on her to-do list — declutter the house, make home repairs, straighten out her finances, safeguard her mother’s health — Williams-Brett told me she’d been struggling with shame and fear. “All the time, I feel I’m not doing what I should be well enough,” she said.

Michael Davis, shown in an undated photo, is a Manhattan artist who lives alone. He says his most pressing concern is “finding something to do that’s worthwhile” now that arthritis has made it difficult for him to paint. “There are days that go by when I don’t say a word to anyone.” (Michael Davis)
Jeff Kromrey, who lives alone in Tampa, Florida, knows he’s fortunate to be healthy and financially stable. He’s exceptionally close to his adult daughter, who will be his health care and legal decision-maker should he become incapacitated. (Jeff Kromrey)

Hearing other seniors voice similar concerns during Aging Alone Together sessions, Williams-Brett realized she didn’t judge them as she was judging herself. “I thought, we all have issues we’re dealing with,” she said. “You don’t have anything to feel ashamed of.”

Kromrey, who lives alone in Tampa, Florida, knows he’s fortunate to be healthy, financially stable, and very close with his adult daughter, who will be his health care and legal decision-maker should he become incapacitated. Kromrey, widowed nine years ago, also has three sons — two in South Carolina and one in West Palm Beach, Florida.

While participating in Aging Alone Together, Kromrey realized he had assumed he’d never have a health crisis such as a stroke or heart attack — a common form of denial.

His daughter and her husband planned to travel from North Carolina to join Kromrey over Thanksgiving. During that visit, Kromrey said, he would give her passwords to his computer and online accounts, explain his system for keeping track of bills, and show her where other important files are.

“That way, she’ll just be able to take right over if something unexpected occurs,” he said.

Davis is an artist who never married, doesn’t have siblings and lives alone in Manhattan. In a phone conversation, he said his most pressing concern is “finding something to do that’s worthwhile” now that arthritis has made it difficult for him to paint.

In some ways, Davis is prepared for the future. He has a long-term care insurance policy that will pay for help in the home and a rent-regulated apartment in a building with an elevator. But he recognizes that he’s become too isolated as his artistic activities have waned.

“There are days that go by when I don’t say a word to anyone,” Davis acknowledged. “I have my friends, but they have their own lives, with their children and grandchildren. I’m turning to Dorot for more social contact. And Aging Alone Together has helped me focus on the here and now.”

For more information about Aging Alone Together, email agingalonetogether@dorotusa.org or visit .

A national clearinghouse of resources for solo agers and information about solo-ager groups in the United States is available at the website.

The National Council on Aging to resources and support for older adults living alone.

Facebook groups for solo agers include , , , and . Another online community is .

Books about planning for solo aging include “Essential Retirement Planning for Solo Agers,” “Solo and Smart,” “Who Will Take Care of Me When I’m Old?” and “The Complete Eldercare Planner.”

about planning for solo aging can be found on YouTube, including from CJE SeniorLife.

We’re eager to hear from readers about questions you’d like answered, problems you’ve been having with your care, and advice you need in dealing with the health care system. Visit  to submit your requests or tips.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/aging-alone-resources-older-adults-solo-agers/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Homebound Seniors Living Alone Often Slip Through Health System’s Cracks /aging/seniors-homebound-living-alone-health-risks-new-york/ Mon, 02 Dec 2024 09:00:00 +0000 /?post_type=article&p=1929131 Carolyn Dickens, 76, was sitting at her dining room table, struggling to catch her breath as her physician looked on with concern.

“What’s going on with your breathing?” asked Peter Gliatto, director of Mount Sinai’s Visiting Doctors Program.

“I don’t know,” she answered, so softly it was hard to hear. “Going from here to the bathroom or the door, I get really winded. I don’t know when it’s going to be my last breath.”

Dickens, a lung cancer survivor, lives in central Harlem, barely getting by. She has serious lung disease and high blood pressure and suffers regular fainting spells. In the past year, she’s fallen several times and dropped to 85 pounds, a dangerously low weight.

And she lives alone, without any help — a highly perilous situation.

Across the country, about 2 million adults 65 and older are completely or mostly homebound, while an additional 5.5 million seniors can get out only with significant difficulty or assistance. This is almost surely an undercount, since the data is from more than a dozen years ago.

It’s a population whose numbers far exceed those living in nursing homes — about 1.2 million — and yet it receives much less attention from policymakers, legislators, and academics who study aging.

Consider some eye-opening statistics about completely homebound seniors from a study published in 2020 in : Nearly 40% have five or more chronic medical conditions, such as heart or lung disease. Almost 30% are believed to have “probable dementia.” Seventy-seven percent have difficulty with at least one daily task such as bathing or dressing.

Almost 40% live by themselves.

That “on my own” status magnifies these individuals’ already considerable vulnerability, something that became acutely obvious during the covid-19 outbreak, when the number of sick and disabled seniors confined to their homes doubled.

“People who are homebound, like other individuals who are seriously ill, rely on other people for so much,” said Katherine Ornstein, director of the Center for Equity in Aging at the Johns Hopkins School of Nursing. “If they don’t have someone there with them, they’re at risk of not having food, not having access to health care, not living in a safe environment.”

Research has shown that older homebound adults are less likely to receive regular primary care than other seniors. They’re also more likely to end up in the hospital with medical crises that might have been prevented if someone had been checking on them.

To better understand the experiences of these seniors, I accompanied Gliatto on some home visits in New York City. Mount Sinai’s Visiting Doctors Program, established in 1995, is one of the oldest in the nation. who rarely or never leave home have access to this kind of home-based primary care.

Gliatto and his staff — seven part-time doctors, three nurse practitioners, two nurses, two social workers, and three administrative staffers — serve about 1,000 patients in Manhattan each year.

These patients have complicated needs and require high levels of assistance. In recent years, Gliatto has had to cut staff as Mount Sinai has reduced its financial contribution to the program. It doesn’t turn a profit, because reimbursement for services is low and expenses are high.

First, Gliatto stopped in to see Sandra Pettway, 79, who never married or had children and has lived by herself in a two-bedroom Harlem apartment for 30 years.

Pettway has severe spinal problems and back pain, as well as Type 2 diabetes and depression. She has difficulty moving around and rarely leaves her apartment. “Since the pandemic, it’s been awfully lonely,” she told me.

When I asked who checks in on her, Pettway mentioned her next-door neighbor. There’s no one else she sees regularly.

Pettway told the doctor she was increasingly apprehensive about an upcoming spinal surgery. He reassured her that Medicare would cover in-home nursing care, aides, and physical therapy services.

“Someone will be with you, at least for six weeks,” he said. Left unsaid: Afterward, she would be on her own. (The surgery in April went well, Gliatto reported later.)

The doctor listened carefully as Pettway talked about her memory lapses.

“I can remember when I was a year old, but I can’t remember 10 minutes ago,” she said. He told her that he thought she was managing well but that he would arrange testing if there was further evidence of cognitive decline. For now, he said, he’s not particularly worried about her ability to manage on her own.

A doctor performs a visual exam on a senior female patient
Physician Peter Gliatto visits Marianne Gluck Morrison in her cluttered Greenwich Village apartment. Morrison said she’d been feeling dizzy over the past few weeks, and Gliatto gave her a basic neurological exam, asking her to follow his fingers with her eyes and touch her fingers to her nose. “I think your problem is with your ear, not your brain,” he tells her, describing symptoms of vertigo. (Judith Graham for ºÚÁϳԹÏÍø News)
A doctor performs at home medical assessment of a senior female.
Sandra Pettway never married or had children. She’s lived by herself in a two-bedroom Harlem apartment for 30 years. Pettway has severe spinal problems, back pain, Type 2 diabetes, and depression. She has difficulty moving around and rarely leaves her apartment. “Since the pandemic, it’s been awfully lonely,” she says. (Judith Graham for ºÚÁϳԹÏÍø News)

Several blocks away, Gliatto visited Dickens, who has lived in her one-bedroom Harlem apartment for 31 years. Dickens told me she hasn’t seen other people regularly since her sister, who used to help her out, had a stroke. Most of the neighbors she knew well have died. Her only other close relative is a niece in the Bronx whom she sees about once a month.

Dickens worked with special-education students for decades in New York City’s public schools. Now she lives on a small pension and Social Security — too much to qualify for Medicaid. (Medicaid, the program for low-income people, will pay for aides in the home. Medicare, which covers people over age 65, does not.) Like Pettway, she has only a small fixed income, so she can’t afford in-home help.

Every Friday, God’s Love We Deliver, an organization that prepares medically tailored meals for sick people, delivers a week’s worth of frozen breakfasts and dinners that Dickens reheats in the microwave. She almost never goes out. When she has energy, she tries to do a bit of cleaning.

Without the ongoing attention from Gliatto, Dickens doesn’t know what she’d do. “Having to get up and go out, you know, putting on your clothes, it’s a task,” she said. “And I have the fear of falling.”

The next day, Gliatto visited Marianne Gluck Morrison, 73, a former survey researcher for New York City’s personnel department, in her cluttered Greenwich Village apartment. Morrison, who doesn’t have any siblings or children, was widowed in 2010 and has lived alone since.

Morrison said she’d been feeling dizzy over the past few weeks, and Gliatto gave her a basic neurological exam, asking her to follow his fingers with her eyes and touch her fingers to her nose.

“I think your problem is with your ear, not your brain,” he told her, describing symptoms of vertigo.

Because she had severe wounds on her feet related to Type 2 diabetes, Morrison had been getting home health care for several weeks through Medicare. But those services — help from aides, nurses, and physical therapists — were due to expire in two weeks.

“I don’t know what I’ll do then, probably just spend a lot of time in bed,” Morrison told me. Among her other medical conditions: congestive heart failure, osteoarthritis, an irregular heartbeat, chronic kidney disease, and depression.

Morrison hasn’t left her apartment since November 2023, when she returned home after a hospitalization and several months at a rehabilitation center. Climbing the three steps that lead up into her apartment building is simply too hard.

“It’s hard to be by myself so much of the time. It’s lonely,” she told me. “I would love to have people see me in the house. But at this point, because of the clutter, I can’t do it.”

When I asked Morrison who she feels she can count on, she listed Gliatto and a mental health therapist from Henry Street Settlement, a social services organization. She has one close friend she speaks with on the phone most nights.

“The problem is I’ve lost eight to nine friends in the last 15 years,” she said, sighing heavily. “They’ve died or moved away.”

Bruce Leff, director of the Center for Transformative Geriatric Research at the Johns Hopkins School of Medicine, is a leading advocate of home-based medical care. “It’s kind of amazing how people find ways to get by,” he said when I asked him about homebound older adults who live alone. “There’s a significant degree of frailty and vulnerability, but there is also substantial resilience.”

With the rapid expansion of the aging population in the years ahead, Leff is convinced that more kinds of care will move into the home, everything from rehab services to palliative care to hospital-level services.

“It will simply be impossible to build enough hospitals and health facilities to meet the demand from an aging population,” he said.

But that will be challenging for homebound older adults who are on their own. Without on-site family caregivers, there may be no one around to help manage this home-based care.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/seniors-homebound-living-alone-health-risks-new-york/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Older Americans Living Alone Often Rely on Neighbors or Others Willing To Help /aging/older-americans-living-alone-help-neighbors-minneapolis-chicago-boulder/ Tue, 12 Nov 2024 09:00:00 +0000 Donald Hammen, 80, and his longtime next-door neighbor in south Minneapolis, Julie McMahon, have an understanding. Every morning, she checks to see whether he’s raised the blinds in his dining room window. If not, she’ll call Hammen or let herself into his house to see what’s going on.

Should McMahon find Hammen in a bad way, she plans to contact his sister-in-law, who lives in a suburb of Des Moines. That’s his closest relative. Hammen never married or had children, and his younger brother died in 2022.

Although Hammen lives alone, a web of relationships binds him to his city and his community — neighbors, friends, former co-workers, fellow volunteers with an advocacy group for seniors, and fellow members of a group of solo agers. McMahon is an emergency contact, as is a former co-worker. When Hammen was hit by a car in February 2019, another neighbor did his laundry. A friend came over to keep him company. Other people went on walks with Hammen as he got back on his feet.

Those connections are certainly sustaining. Yet Hammen has no idea who might care for him should he become unable to care for himself.

“I’ll cross that bridge when I come to it,” he told me.

These are fundamental questions for older adults who live alone: Who will be there for them, for matters large and small? Who will help them navigate the ever more complex health care system and advocate on their behalf? Who will take out the garbage if it becomes too difficult to carry? Who will shovel the snow if a winter storm blows through?

American society rests on an assumption that families take care of their own. But 15 million Americans 50 and older didn’t have any close family — spouses, partners, or children — in 2015, the latest year for which reliable estimates are available. Most lived alone. By 2060, that number is expected to swell to 21 million.

Beyond that, millions of seniors living on their own aren’t geographically close to adult children or other family members. Or they have difficult, strained relationships that keep them from asking for support.

These older adults must seek assistance from other quarters when they need it. Often they turn to neighbors, friends, church members, or community groups — or paid help, if they can afford it.

And often, they simply go without, leaving them vulnerable to isolation, depression, and deteriorating health.

When seniors living alone have no close family, can nonfamily helpers be an adequate substitute? This hasn’t been well studied.

“We’re just beginning to do a better job of understanding that people have a multiplicity of connections outside their families that are essential to their well-being,” said Sarah Patterson, a demographer and sociologist at the Institute for Social Research at the University of Michigan.

The takeaway from a noteworthy by researchers at Emory University, Johns Hopkins University, and the Icahn School of Medicine at Mount Sinai was this: Many seniors adapt to living solo by weaving together local social networks of friends, neighbors, nieces and nephews, and siblings (if they’re available) to support their independence.

A studio portrait of Linda Camp, a senior woman with short blonde-gray hair and glasses.
Linda Camp, a former administrator with the city of St. Paul, Minnesota, has written several reports about solo agers. But she was still surprised by how much help she required this summer when she had cataract surgery on both eyes. Camp was fortunate — she has a sizable network of former co-workers, neighbors, and friends. “What I tell people when I talk about solos is that all kinds of connections have value,” she says. (Lifetouch LLC)

Still, finding reliable local connections isn’t always easy. And nonfamily helpers may not be willing or able to provide consistent, intense hands-on care if that becomes necessary.

When AARP surveyed in 2022, only 25% said they could count on someone to help them cook, clean, get groceries, or perform other household tasks if needed. Just 38% said they knew someone who could help manage ongoing care needs. (AARP defined solo agers as people 50 and older who aren’t married, don’t have living children, and live alone.)

Linda Camp, 73, a former administrator with the city of St. Paul, Minnesota, who never married or had children, has for the Citizens League in St. Paul about growing old alone. Yet she was still surprised by how much help she required this summer when she had cataract surgery on both eyes.

A former co-worker accompanied Camp to the surgery center twice and waited there until the procedures were finished. A relatively new friend took her to a follow-up appointment. An 81-year-old downstairs neighbor agreed to come up if Camp needed something. Other friends and neighbors also chipped in.

Camp was fortunate — she has a sizable network of former co-workers, neighbors, and friends. “What I tell people when I talk about solos is all kinds of connections have value,” she said.

Michelle Wallace, 75, a former technology project manager, lives alone in a single-family home in Broomfield, Colorado. She has worked hard to assemble a local network of support. Wallace has been divorced for nearly three decades and doesn’t have children. Though she has two sisters and a brother, they live far away.

A portrait of Michelle Wallace, a senior woman with shoulder length, straight gray hair and glasses.
Michelle Wallace, a former technology project manager, lives alone in a single-family home in Broomfield, Colorado. She describes herself as happily unpartnered. “Coupling isn’t for me,” she says. “I need my space and my privacy too much.” Instead, Wallace has cultivated relationships with several people she met through local groups for solo agers. Many have become close friends.

Wallace describes herself as happily unpartnered. “Coupling isn’t for me,” she told me when we first talked. “I need my space and my privacy too much.”

Instead, she’s cultivated relationships with several people she met through local groups for solo agers. Many have become her close friends. Two of them, both in their 70s, are “like sisters,” Wallace said. Another, who lives just a few blocks away, has agreed to become a “we’ll help each other out when needed” partner.

“In our 70s, solo agers are looking for support systems. And the scariest thing is not having friends close by,” Wallace told me. “It’s the local network that’s really important.”

Gardner Stern, 96, who lives alone on the 24th floor of the Carl Sandburg Village condominium complex just north of downtown Chicago, has been far less deliberate. He never planned for his care needs in older age. He just figured things would work out.

They have, but not as Stern predicted.

The person who helps him the most is his third wife, Jobie Stern, 75. The couple went through an acrimonious divorce in 1985, but now she goes to all his doctor appointments, takes him grocery shopping, drives him to physical therapy twice a week and stops in every afternoon to chat for about an hour.

She’s also Gardner’s neighbor — she lives 10 floors above him in the same building.

Jobie Stern, a senior woman with blonde hair, stands in a room and wears a green jacket.
Jobie Stern, Gardner Stern’s ex-wife, lives 10 floors above him in the same condominium complex. She goes to all of his doctor appointments, takes him grocery shopping, drives him to physical therapy twice a week, and stops in every afternoon to chat for about an hour. (Judith Graham for ºÚÁϳԹÏÍø News)
Joy Loverde, an older woman with shoulder length gray hair and glasses, stands beside Gardner Stern, a senior man wearing glasses and a suit jacket. They are sitting down at a table with a white tablecloth.
Gardner Stern (right) lives alone in a Chicago condominium complex. He never planned for his care needs in older age. He just figured things would work out, one way or another. Joy Loverde, an elder-care specialist, lives in the same building and is Stern’s “tell it like it is” friend. Loverde helped Stern decide to give up driving and persuaded him to have a walk-in shower with a bench installed in his bathroom. (Joy Loverde)

Why does she do it? “I guess because I moved into the building and he’s very old and he’s a really good guy and we have a child together,” she told me. “I get happiness knowing he’s doing as well as possible.”

Over many years, she said, she and Gardner have put their differences aside.

“Never would I have expected this of Jobie,” Gardner told me. “I guess time heals all wounds.”

Gardner’s other main local connections are Joy Loverde, 72, an author of elder-care books, and her 79-year-old husband, who live on the 28th floor. Gardner calls Loverde his “tell it like it is” friend — the one who helped him decide it was time to stop driving, the one who persuaded him to have a walk-in shower with a bench installed in his bathroom, the one who plays Scrabble with him every week and offers practical advice whenever he has a problem.

“I think I would be in an assisted living facility without her,” Gardner said.

There’s also family: four children, all based in Los Angeles, eight grandchildren, mostly in L.A., and nine great-grandchildren. Gardner sees most of this extended clan about once a year and speaks to them often, but he can’t depend on them for his day-to-day needs.

For that, Loverde and Jobie are an elevator ride away. “I’ve got these wonderful people who are monitoring my existence, and a big-screen TV, and a freezer full of good frozen dinners,” Gardner said. “It’s all that I need.”

As I explore the lives of older adults living alone in the next several months, I’m eager to hear from people who are in this situation. If you’d like to share your stories, please send them to khn.navigatingaging@gmail.com.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/older-americans-living-alone-help-neighbors-minneapolis-chicago-boulder/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Millions of Aging Americans Are Facing Dementia by Themselves /aging/navigating-aging-alone-dementia/ Tue, 15 Oct 2024 09:00:00 +0000 /?post_type=article&p=1920042 Sociologist Elena Portacolone was taken aback. Many of the older adults in San Francisco she visited at home for a research project were confused when she came to the door. They’d forgotten the appointment or couldn’t remember speaking to her.

It seemed clear they had some type of cognitive impairment. Yet they were living alone.

Portacolone, an associate professor at the University of California-San Francisco, wondered how common this was. Had anyone examined this group? How were they managing?

When she reviewed the research literature more than a decade ago, there was little there. “I realized this is a largely invisible population,” she said.

Portacolone got to work and now leads the at UCSF. The project that at least 4.3 million people 55 or older who have cognitive impairment or dementia live alone in the United States.

About half have trouble with daily activities such as bathing, eating, cooking, shopping, taking medications, and managing money, according to their research. But only 1 in 3 received help with at least one such activity.

Compared with other older adults who live by themselves, people living alone with cognitive impairment are older, more likely to be women, and disproportionately Black or Latino, with lower levels of education, wealth, and homeownership. Yet for publicly funded programs such as Medicaid that pay for aides to provide services in the home.

In a health care system that assumes older adults have family caregivers to help them, “we realized this population is destined to fall through the cracks,” Portacolone said.

Imagine what this means. As memory and thinking problems accelerate, these seniors can lose track of bills, have their electricity shut off, or be threatened with eviction. They might stop shopping (it’s too overwhelming) or cooking (it’s too hard to follow recipes). Or they might be unable to communicate clearly or navigate automated phone systems.

A variety of other problems can ensue, including social isolation, malnutrition, self-neglect, and susceptibility to scams. Without someone to watch over them, older adults on their own may experience worsening health without anyone noticing or struggle with dementia without ever being diagnosed.

Should vulnerable seniors live this way?

For years, Portacolone and her collaborators nationwide have followed nearly 100 older adults with cognitive impairment who live alone. She listed some concerns people told researchers they worried most about: “Who do I trust? When is the next time I’m going to forget? If I think I need more help, where do I find it? How do I hide my forgetfulness?”

Jane Lowers, an assistant professor at the Emory University School of Medicine, has been studying “kinless” adults in the early stages of dementia — those without a live-in partner or children nearby. Their top priority, she told me, is “remaining independent for as long as possible.”

Seeking to learn more about these seniors’ experiences, I contacted the National Council of Dementia Minds. The organization last year started a biweekly online group for people living alone with dementia. Its staffers arranged a Zoom conversation with five people, all with early-to-moderate dementia.

One was Kathleen Healy, 60, who has significant memory problems and lives alone in Fresno, California.

“One of the biggest challenges is that people don’t really see what’s going on with you,” she said. “Let’s say my house is a mess or I’m sick or I’m losing track of my bills. If I can get myself together, I can walk out the door and nobody knows what’s going on.”

An administrator with the city of Fresno for 28 years, Healy said she had to retire in 2019 “because my brain stopped working.” With her pension, she’s able to cover her expenses, but she doesn’t have significant savings or assets.

Healy said she can’t rely on family members who have troubles of their own. (Her 83-year-old mother has dementia and lives with Healy’s sister.) The person who checks on her most frequently is an ex-boyfriend.

“I don’t really have anybody,” she said, choking up.

David West, 62, is a divorced former social worker with , which can impair thinking and concentration and cause hallucinations. He lives alone in an apartment in downtown Fort Worth, Texas.

“I will not survive this in the end — I know that — but I’m going to meet this with resilience,” he said when I spoke with him by phone in June.

Since his diagnosis nearly three years ago, West has filled his life with exercise and joined three dementia support groups. He spends up to 20 hours a week volunteering, at a restaurant, a food bank, a museum, and .

Still, West knows that his illness will progress and that this period of relative independence is limited. What will he do then? Although he has three adult children, he said, he can’t expect them to take him in and become dementia caregivers — an extraordinarily stressful, time-intensive, financially draining commitment.

“I don’t know how it’s going to work out,” he said.

Denise Baker, 80, a former CIA analyst, lives in a 100-year-old house in Asheville, North Carolina, with her dog, Yolo. She has cognitive problems related to a stroke 28 years ago, Alzheimer’s disease, and serious vision impairment that prevents her from driving. Her adult daughters live in Massachusetts and Colorado.

“I’m a very independent person, and I find that I want to do everything I possibly can for myself,” Baker told me, months before Asheville was ravaged by severe flooding. “It makes me feel better about myself.”

She was lucky in the aftermath of Hurricane Helene: Baker lives on a hill in West Asheville that was untouched by floodwaters. In the week immediately after the storm, she filled water jugs every day at an old well near her house and brought them back in a wheelbarrow.  Though her power was out, she had plenty of food and neighbors looked in on her. 

“I’m absolutely fine,” she told me on the phone in early October after a member of drove to Baker’s house to check in on her, upon my request. Baker is on the steering committee of that organization.

Baker once found it hard to ask for assistance, but these days she relies routinely on friends and hired help. A few examples: Elaine takes her grocery shopping every Monday. Roberta comes once a month to help with her mail and finances. Jack mows her lawn. Helen offers care management advice. Tom, a cab driver she connected with through Buncombe County’s transportation program for seniors, is her go-to guy for errands.

Her daughter Karen in Boston has the authority to make legal and health care decisions when Baker can no longer do so. When that day comes — and Baker knows it will — she expects her long-term care insurance policy to pay for home aides or memory care. Until then, “I plan to do as much as I can in the state I’m in,” she said.

Much can be done to better assist older adults with dementia who are on their own, said Elizabeth Gould, co-director of the National Alzheimer’s and Dementia Resource Center at RTI International, a nonprofit research institute. “If health care providers would just ask ‘Who do you live with?’” she said, “that could open the door to identifying who might need more help.”

We’re eager to hear from readers about questions you’d like answered, problems you’ve been having with your care, and advice you need in dealing with the health care system. Visit  to submit your requests or tips.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/navigating-aging-alone-dementia/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Older Men’s Connections Often Wither When They’re on Their Own /aging/older-men-connections-isolation-loneliness-navigating-aging/ Thu, 10 Oct 2024 09:00:00 +0000 /?post_type=article&p=1917945 At age 66, South Carolina physician Paul Rousseau decided to retire after tending for decades to the suffering of people who were seriously ill or dying. It was a difficult and emotionally fraught transition.

“I didn’t know what I was going to do, where I was going to go,” he told me, describing a period of crisis that began in 2017.

Seeking a change of venue, Rousseau moved to the mountains of North Carolina, the start of an extended period of wandering. Soon, a sense of emptiness enveloped him. He had no friends or hobbies — his work as a doctor had been all-consuming. Former colleagues didn’t get in touch, nor did he reach out.

His wife had passed away after a painful illness a decade earlier. Rousseau was estranged from one adult daughter and in only occasional contact with another. His isolation mounted as his three dogs, his most reliable companions, died.

Rousseau was completely alone — without friends, family, or a professional identity — and overcome by a sense of loss.

“I was a somewhat distinguished physician with a 60-page resume,” Rousseau, now 73, wrote in the Journal of the American Geriatrics Society in May. “Now, I’m ‘no one,’ a retired, forgotten old man who dithers away the days.”

In some ways, older men living alone are disadvantaged compared with older women in similar circumstances. Research shows that men tend to have fewer friends than women and be less inclined to make new friends. Often, they’re reluctant to ask for help.

“Men have a harder time being connected and reaching out,” said , a psychiatrist who directs the Harvard Study of Adult Development, which has traced the arc of hundreds of men’s lives over a span of more than eight decades. The men in the study who fared the worst, Waldinger said, “didn’t have friendships and things they were interested in — and couldn’t find them.” He recommends that men invest in their “social fitness” in addition to their physical fitness to ensure they have satisfying social interactions.

Slightly more than 1 in every 5 men ages 65 to 74 live alone, according to . That rises to nearly 1 in 4 for those 75 or older. Nearly 40% of these men are divorced, 31% are widowed, and 21% never married.

That’s a significant change from 2000, when only 1 in 6 older men lived by themselves. Longer life spans for men and rising rates are contributing to the trend. It’s difficult to find information about this group — which is dwarfed by the number of women who live alone — because it hasn’t been studied in depth. But psychologists and psychiatrists say these older men can be quite vulnerable.

When men are widowed, their health and well-being tend to decline more than women’s.

“Older men have a tendency to ruminate, to get into our heads with worries and fears and to feel more lonely and isolated,” said Jed Diamond, 80, a therapist and the author of “” and “.”

A man in a cap and tshirt is seated on a chair
The Rev. Johnny Walker, 76, lives on Chicago’s West Side. Twice divorced, he has lived on his own for five years. He said he finds solace in religion: “When I wake up in the morning, that’s a new blessing. I just thank God that he has brought me this far.” (Judith Graham for ºÚÁϳԹÏÍø News)
A man with white hair and a beard stands next to a brown-haired woman
Verne Ostrander lives alone in the small town of Willits, California. His second wife, Cindy, died of cancer four years ago. When Ostrander isn’t painting watercolors, composing music, or playing guitar, “I fall into this lonely state, and I cry quite a bit,” he said. “I don’t ignore those feelings. I let myself feel them. It’s like therapy.” (Verne Ostrander)

Add in the decline of civic institutions where men used to congregate — think of the Elks or the Shriners — and older men’s reduced ability to participate in athletic activities, and the result is a lack of stimulation and the loss of a sense of belonging.

Depression can ensue, fueling excessive alcohol use, accidents, or, in the most extreme cases, suicide. Of all age groups in the United States, men over age 75 have the , by far.

For this column, I spoke at length to several older men who live alone. All but two (who’d been divorced) were widowed. Their experiences don’t represent all men who live alone. But still, they’re revealing.

The first person I called was Art Koff, 88, of Chicago, a longtime marketing executive I’d known for several years. When I reached out in January, I learned that Koff’s wife, Norma, had died the year before, leaving him hobbled by grief. Uninterested in eating and beset by unremitting loneliness, Koff lost 45 pounds.

“I’ve had a long and wonderful life, and I have lots of family and lots of friends who are terrific,” Koff told me. But now, he said, “nothing is of interest to me any longer.”

“I’m not happy living this life,” he said.

Nine days later, I learned that Koff had died. His nephew, Alexander Koff, said he had passed out and was gone within a day. The death certificate cited “end stage protein calorie malnutrition” as the cause.

The transition from being coupled to being single can be profoundly disorienting for older men. Lodovico Balducci, 80, was married to his wife, Claudia, for 52 years before she died in October 2023. Balducci, a renowned physician known as the “patriarch of geriatric oncology,” in the Journal of the American Geriatrics Society, likening Claudia’s death to an “amputation.”

“I find myself talking to her all the time, most of the time in my head,” Balducci told me in a phone conversation. When I asked him whom he confides in, he admitted, “Maybe I don’t have any close friends.”

Disoriented and disorganized since Claudia died, he said his “anxiety has exploded.”

A man in a white long sleeved t-shirt pets a large brown dog
Paul Rousseau pets his neighbor’s dog, Obie, at the fish hatchery where he volunteers in Jackson, Wyoming. (Amber Baesler for ºÚÁϳԹÏÍø News)

We spoke in late February. Two weeks later, Balducci moved from Tampa to New Orleans, to be near his son and daughter-in-law and their two teenagers.

“I am planning to help as much as possible with my grandchildren,” he said. “Life has to go on.”

Verne Ostrander, a carpenter in the small town of Willits, California, about 140 miles north of San Francisco, was reflective when I spoke with him, also in late February. His second wife, Cindy Morninglight, died four years ago after a long battle with cancer.

“Here I am, almost 80 years old — alone,” Ostrander said. “Who would have guessed?”

When Ostrander isn’t painting watercolors, composing music, or playing guitar, “I fall into this lonely state, and I cry quite a bit,” he told me. “I don’t ignore those feelings. I let myself feel them. It’s like therapy.”

Ostrander has lived in Willits for nearly 50 years and belongs to a men’s group and a couples’ group that’s been meeting for 20 years. He’s in remarkably good health and in close touch with his three adult children, who live within easy driving distance.

“The hard part of living alone is missing Cindy,” he told me. “The good part is the freedom to do whatever I want. My goal is to live another 20 to 30 years and become a better artist and get to know my kids when they get older.”

The Rev. Johnny Walker, 76, lives in a low-income apartment building in a financially challenged neighborhood on Chicago’s West Side. Twice divorced, he’s been on his own for five years. He, too, has close family connections. At least one of his several children and grandchildren checks in on him every day.

Walker says he had a life-changing religious conversion in 1993. Since then, he has depended on his faith and his church for a sense of meaning and community.

“It’s not hard being alone,” Walker said when I asked whether he was lonely. “I accept Christ in my life, and he said that he would never leave us or forsake us. When I wake up in the morning, that’s a new blessing. I just thank God that he has brought me this far.”

Waldinger recommended that men “make an effort every day to be in touch with people. Find what you love — golf, gardening, birdwatching, pickleball, working on a political campaign — and pursue it,” he said. “Put yourself in a situation where you’re going to see the same people over and over again. Because that’s the most natural way conversations get struck up and friendships start to develop.”

A man in a salmon colored sweater is seated beside a blonde woman, resting her head on his shoulders
Art Koff’s wife, Norma, died last year. Racked by grief and with little desire to eat, Koff lost 45 pounds. Though he had many friends and loving family, “nothing is of interest to me any longer,” Koff said in January. He died a few days later. (Alexander Koff)

Rousseau, the retired South Carolina doctor, said he doesn’t think about the future much. After feeling lost for several years, he moved across the country to Jackson, Wyoming, in the summer of 2023. He embraced solitude, choosing a remarkably isolated spot to live — a 150-square-foot cabin with no running water and no bathroom, surrounded by 25,000 undeveloped acres of public and privately owned land.

“Yes, I’m still lonely, but the nature and the beauty here totally changed me and focused me on what’s really important,” he told me, describing a feeling of redemption in his solitude.

Rousseau realizes that the death of his parents and a very close friend in his childhood left him with a sense of loss that he kept at bay for most of his life. Now, he said, rather than denying his vulnerability, he’s trying to live with it. “There’s only so long you can put off dealing with all the things you’re trying to escape from.”

It’s not the life he envisioned, but it’s one that fits him, Rousseau said. He stays busy with volunteer activities — cleaning tanks and running tours at Jackson’s fish hatchery, serving as a part-time park ranger, and maintaining trails in nearby national forests. Those activities put him in touch with other people, mostly strangers, only intermittently.

What will happen to him when this way of living is no longer possible?

“I wish I had an answer, but I don’t,” Rousseau said. “I don’t see my daughters taking care of me. As far as someone else, I don’t think there’s anyone else who’s going to help me.”

A man walks across a wooden bridge over a river
Paul Rousseau at a fish hatchery in Jackson, Wyoming. “Yes, I’m still lonely, but the nature and the beauty here totally changed me,” he said. (Amber Baesler for ºÚÁϳԹÏÍø News)

We’re eager to hear from readers about questions you’d like answered, problems you’ve been having with your care, and advice you need in dealing with the health care system. Visit  to submit your requests or tips.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/older-men-connections-isolation-loneliness-navigating-aging/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Historic Numbers of Americans Live by Themselves as They Age /aging/going-it-alone-americans-aging-by-themselves-support-networks-children/ Tue, 17 Sep 2024 09:00:00 +0000 Gerri Norington, 78, never wanted to be on her own as she grew old.

But her first marriage ended in divorce, and her second husband died more than 30 years ago. When a five-year relationship came to a close in 2006, she found herself alone — a situation that has lasted since.

“I miss having a companion who I can talk to and ask ‘How was your day?’ or ‘What do you think of what’s going on in the world?’” said Norington, who lives in an apartment building for seniors on the South Side of Chicago. Although she has a loving daughter in the city, “I don’t want to be a burden to her,” she said.

Norington is part of a large but often overlooked group: the more than 16 million Americans living alone while growing old. Surprisingly little is known about their experiences.

This slice of the older population has significant health issues: Nearly 4 in 10 seniors living alone have vision or hearing loss, difficulty caring for themselves and living independently, problems with cognition, or other disabilities, according to a KFF analysis of 2022 census data.

If help at home isn’t available when needed — an altogether too common problem — being alone can magnify these difficulties and contribute to worsening health.

Studies find that seniors on their own are at higher risk of becoming isolated, depressed, and inactive, having accidents, and neglecting to care for themselves. As a result, they tend to be hospitalized more often and suffer earlier-than-expected deaths.

Getting medical services can be a problem, especially if older adults living alone reside in rural areas or don’t drive. Too often, experts observe, health care providers don’t ask about older adults’ living situations and are unaware of the challenges they face.

***

During the past six months, I’ve spoken to dozens of older adults who live alone either by choice or by circumstance — most commonly, a spouse’s death. Some have adult children or other close relatives who are involved in their lives; many don’t.

In lengthy conversations, these seniors expressed several common concerns: How did I end up alone at this time of life? Am I OK with that? Who can I call on for help? Who can make decisions on my behalf if I’m unable to? How long will I be able to take care of myself, and what will happen when I can’t?

This “gray revolution” in Americans’ living arrangements is fueled by longer life spans, rising rates of divorce and childlessness, smaller families, the geographic dispersion of family members, an emphasis on aging in place, and a preference for what Eric Klinenberg, a professor of sociology at New York University, calls “intimacy at a distance” — being close to family, but not too close.

The most reliable, up-to-date data about older adults who live alone comes from the U.S. Census Bureau. According to its 2023 Current Population Survey, about 28% of people 65 and older live by themselves, including slightly fewer than 6 million men and slightly more than 10 million women. (The figure doesn’t include seniors living in institutions, primarily assisted living and nursing homes.)

By contrast, 1 in 10 older Americans lived on their own in 1950.

A senior man in a blue button up shirt stands in front of a building a bush with red flowers
Ken Elliott, a retired psychology professor, lives by himself in a house in Mount Vernon, Maine. His only living relative is a brother in California. Elliott is thinking about how to put together a team of people who can help him age in place. “Aging without a mythic family support system — which everyone assumes people have — is tough for everybody,” Elliott says. (Ken Elliott)
A senior woman in a teal shirt and white shorts sits on a black couch
“I like being alone better than I like being in relationships,” says Janice Chavez of Denver. “I don’t have to ask anybody for anything. If I want to sleep late, I sleep late. If I want to stay up and watch TV, I can. I do whatever I want to do. I love the independence and the freedom.” (Judith Graham for ºÚÁϳԹÏÍø News)

This is, first and foremost, an older women’s issue, because women outlive men and because they’re less likely to remarry after being widowed or divorcing. Twenty-seven percent of women ages 65 to 74 live alone, compared with 21% of men. After age 75, an astonishing 43% of women live alone, compared with only 24% for men.

The majority — 80% — of people who live alone after age 65 are divorced or widowed, twice the rate of the general population, according to KFF’s analysis of 2022 census data. More than 20% have incomes below $13,590, the federal poverty line in 2022, while 27% make between that and $27,180, twice the poverty level.

***

Of course, their experiences vary considerably. How older adults living alone are faring depends on their financial status, their housing, their networks of friends and family members, and resources in the communities where they live.

Attitudes can make a difference. Many older adults relish being independent, while others feel abandoned. It’s common for loneliness to come and go, even among people who have caring friends and family members.

“I like being alone better than I like being in relationships,” said Janice Chavez of Denver, who said she’s in her 70s. “I don’t have to ask anybody for anything. If I want to sleep late, I sleep late. If I want to stay up and watch TV, I can. I do whatever I want to do. I love the independence and the freedom.”

Chavez is twice divorced and has been on her own since 1985. As a girl, she wanted to be married and have lots of kids, but “I picked jerks,” she said. She talks to her daughter, Tracy, every day, and is close to several neighbors. She lives in the home she grew up in, inherited from her mother in 1991. Her only sibling, a brother, died a dozen years ago.

In Chicago, Norington is wondering whether to stay in her senior building or move to the suburbs after her car was vandalized this year. “Since the pandemic, fear has almost paralyzed me from getting out as much as I would like,” she told me.

She’s a take-charge person who has been deeply involved in her community. In 2016, Norington started an organization for single Black seniors in Chicago that sponsored speed dating events and monthly socials for several years. She volunteered with a local medical center doing outreach to seniors and brought health and wellness classes to her building. She organized cruises for friends and acquaintances to the Caribbean and Hawaii in 2022 and 2023.

Now, every morning, Norington sends a spiritual text message to 40 people, who often respond with messages of their own. “It helps me to feel less alone, to feel a sense of inclusion,” she said.

A senior man wearing glasses, a black beret, and a black sweater sits at a table, a cup of black coffee is in front of him
Lester Shane lives alone in an 11-by-14-foot studio apartment in New York City. “There are days when I’m carrying my groceries up three flights of stairs when I think, ‘This is really hard,’” Shane says. (Judith Graham for ºÚÁϳԹÏÍø News)

In Maine, Ken Elliott, 77, a retired psychology professor, lives by himself in a house in Mount Vernon, a town of 1,700 people 20 miles northwest of the state capital. He never married and doesn’t have children. His only living relative is an 80-year-old brother in California.

For several years, Elliott has tried to raise the profile of solo agers among Maine policymakers and senior organizations. This began when Elliott started inquiring about resources available to older adults living by themselves, like him. How were they getting to doctor appointments? Who was helping when they came home from the hospital and needed assistance? What if they needed extra help in the home but couldn’t afford it?

To Elliott’s surprise, he found this group wasn’t on anyone’s radar, and he began advocating on solo agers’ behalf.

Now, Elliott is thinking about how to put together a team of people who can help him as he ages in place — and how to build a stronger sense of community. “Aging without a mythic family support system — which everyone assumes people have — is tough for everybody,” Elliott said.

In Manhattan, Lester Shane, 72, who never married or had children, lives by himself in an 11-by-14-foot studio apartment on the third floor of a building without an elevator. He didn’t make much money during a long career as an actor, a writer, and a theater director, and he’s not sure how he’ll make ends meet once he stops teaching at Pace University.

“There are days when I’m carrying my groceries up three flights of stairs when I think, ‘This is really hard,’” Shane told me. Although his health is pretty good, he knows that won’t last forever.

“I’m on all the lists for senior housing — all lottery situations. Most of the people I’ve talked to said you will probably die before your number comes up,” he said with mordant humor.

Then, Shane turned serious. “I’m old and getting older, and whatever problems I have now are only going to get worse,” he said. As is the case for many older adults who live alone, his friends are getting older and having difficulties of their own.

The prospect of having no one he knows well to turn to is alarming, Shane admitted: “Underneath that is fear.”

Kate Shulamit Fagan, 80, has lived on her own since 1979, after two divorces. “It was never my intention to live alone,” she told me in a lengthy phone conversation. “I expected that I would meet someone and start another relationship and somehow sail off into the rest of my life. It’s been exceedingly hard to give up that expectation.”

When I first spoke to Fagan, in mid-March, she was having difficulty in Philadelphia, where she’d moved two years earlier to be close to one of her sons. “I’ve been really lonely recently,” she told me, describing how difficult it was to adjust to a new life in a new place. Although her son was attentive, Fagan desperately missed the close circle of friends she’d left behind in St. Petersburg, Florida, where she’d lived and worked for 30 years.

Four and a half months later, when I called Fagan again, she’d returned to St. Petersburg and was renting a one-bedroom apartment in a senior building in the center of the city. She’d celebrated her birthday there with 10 close friends and was meeting people in her building. “I’m not completely settled, but I feel fabulous,” she told me.

What accounted for the change? “Here, I know if I want to go out or I need help, quite a few people would be there for me,” Fagan said. “The fear is gone.”

As I explore the lives of older adults living alone in the next several months, I’m eager to hear from people who are in this situation. If you’d like to share your stories, please send them to khn.navigatingaging@gmail.com.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/going-it-alone-americans-aging-by-themselves-support-networks-children/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Judith Graham, Author at ºÚÁϳԹÏÍø News ºÚÁϳԹÏÍø News produces in-depth journalism on health issues and is a core operating program of KFF. Wed, 15 Apr 2026 23:56:43 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.5 /wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=32 Judith Graham, Author at ºÚÁϳԹÏÍø News 32 32 161476233 An Age-Old Fear Grows More Common: ‘I’m Going To Die Alone’ /aging/aging-fear-dying-alone-single-childless-widowhood-divorce/ Thu, 16 Oct 2025 09:00:00 +0000 /?post_type=article&p=2094660 This summer, at dinner with her best friend, Jacki Barden raised an uncomfortable topic: the possibility that she might die alone.

“I have no children, no husband, no siblings,” Barden remembered saying. “Who’s going to hold my hand while I die?”

Barden, 75, never had children. She’s lived on her own in western Massachusetts since her husband passed away in 2003. “You hit a point in your life when you’re not climbing up anymore, you’re climbing down,” she told me. “You start thinking about what it’s going to be like at the end.”

It’s something that many older adults who live alone — a growing population, — wonder about. Many have family and friends they can turn to. But some have no spouse or children, have relatives who live far away, or are estranged from remaining family members. Others have lost dear friends they once depended on to advanced age and illness.

More than 15 million people 55 or older don’t have a spouse or biological children; nearly 2 million have no family members at all.

A portrait of a senior woman with short, curly white hair wearing a red-striped shirt and smiling broadly.
Jacki Barden has prepared thoroughly for the end of her life. Her paperwork is in order and funeral arrangements are made. But she says she’s not sure anyone will be with her when she dies. (Rosemarie Patterson)

Still other older adults have become isolated due to sickness, frailty, or disability. Between , who do not live in nursing homes, aren’t in regular contact with other people. And research shows that isolation becomes even more common as death draws near.

Who will be there for these solo agers as their lives draw to a close? How many of them will die without people they know and care for by their side?

Unfortunately, we have no idea: National surveys don’t capture information about who’s with older adults when they die. But dying alone is a growing concern as more seniors age on their own after widowhood or divorce, or remain single or childless, according to demographers, medical researchers, and physicians who care for older people.

“We’ve always seen patients who were essentially by themselves when they transition into end-of-life care,” said Jairon Johnson, the medical director of hospice and palliative care for Presbyterian Healthcare Services, the largest health care system in New Mexico. “But they weren’t as common as they are now.”

Attention to the potentially fraught consequences of dying alone surged during the covid-19 pandemic, when families were shut out of hospitals and nursing homes as older relatives passed away. But it’s largely fallen off the radar since then.

For many people, including health care practitioners, the prospect provokes a feeling of abandonment. “I can’t imagine what it’s like, on top of a terminal illness, to think I’m dying and I have no one,” said Sarah Cross, an assistant professor of palliative medicine at Emory University School of Medicine.

Cross’ research shows that more people die at home now than in any other setting. While hundreds of hospitals have “No One Dies Alone” programs, which match volunteers with people in their final days, similar services aren’t generally available for people at home.

Alison Butler, 65, is an end-of-life doula who lives and works in the Washington, D.C., area. She helps people and those close to them navigate the dying process. She also has lived alone for 20 years. In a lengthy conversation, Butler admitted that being alone at life’s end seems like a form of rejection. She choked back tears as she spoke about possibly feeling her life “doesn’t and didn’t matter deeply” to anyone.

A portrait of a woman with short grey hair and glasses.
Alison Butler has lived alone for 20 years, since her divorce. “Solo agers tend to feel forgotten,” she says. “That makes the anxiety around end-of-life even worse for solo agers.” (Kathleen Dreier)

Without reliable people around to assist terminally ill adults, there’s also an elevated risk of self-neglect and deteriorating well-being. Most seniors don’t have enough money to pay for assisted living or help at home if they lose the ability to shop, bathe, dress, or move around the house.

Nearly $1 trillion in cuts to Medicaid planned under President Donald Trump’s tax and spending law, previously known as the “One Big Beautiful Bill Act,” probably will , economists and policy experts predict. Medicare, the government’s health insurance program for seniors, generally doesn’t pay for home-based services; Medicaid is the primary source of this kind of help for people who don’t have financial resources. But states may be forced to eviscerate Medicaid home-based care programs as federal funding diminishes.

“I’m really scared about what’s going to happen,” said Bree Johnston, a geriatrician and the director of palliative care at Skagit Regional Health in northwestern Washington state. She predicted that more terminally ill seniors who live alone will end up dying in hospitals, rather than in their homes, because they’ll lack essential services.

“Hospitals are often not the most humane place to die,” Johnston said.

While is an alternative paid for by Medicare, it too often falls short for terminally ill older adults who are alone. (Hospice serves people whose life expectancy is six months or less.) For one thing, hospice is underused: Fewer than half of older adults under age 85 take advantage of hospice services.

Also, “many people think, wrongly, that hospice agencies are going to provide person power on the ground and help with all those functional problems that come up for people at the end of life,” said Ashwin Kotwal, an associate professor of medicine in the division of geriatrics at the University of California-San Francisco School of Medicine.

Instead, agencies usually provide only intermittent care and rely heavily on family caregivers to offer needed assistance with activities such as bathing and eating. Some hospices won’t even accept people who don’t have caregivers, Kotwal noted.

That leaves hospitals. If seniors are lucid, staffers can talk to them about their priorities and walk them through medical decisions that lie ahead, said Paul DeSandre, the chief of palliative and supportive care at Grady Health System in Atlanta.

If they’re delirious or unconscious, which is often the case, staffers normally try to identify someone who can discuss what this senior might have wanted at the end of life and possibly serve as a surrogate decision-maker. Most states have laws specifying default surrogates, usually family members, for people who haven’t named decision-makers in advance.

If all efforts fail, the hospital will go to court to petition for guardianship, and the patient will become a ward of the state, which will assume legal oversight of end-of-life decision-making.

In extreme cases, when no one comes forward, someone who has died alone may be classified as “unclaimed” and buried in a common grave. This, too, is an increasingly common occurrence, according to “The Unclaimed: Abandonment and Hope in the City of Angels,” a book about this phenomenon, published last year.

Shoshana Ungerleider, a physician, founded End Well, an organization committed to improving end-of-life experiences. She suggested people make concerted efforts to identify seniors who live alone and are seriously ill early and provide them with expanded support. Stay in touch with them regularly through calls, video, or text messages, she said.

And don’t assume all older adults have the same priorities for end-of-life care. They don’t.

Barden, the widow in Massachusetts, for instance, has focused on preparing in advance: All her financial and legal arrangements are in order and funeral arrangements are made.

“I’ve been very blessed in life: We have to look back on what we have to be grateful for and not dwell on the bad part,” she told me. As for imagining her life’s end, she said, “it’s going to be what it is. We have no control over any of that stuff. I guess I’d like someone with me, but I don’t know how it’s going to work out.”

A Zoom photo of a senior woman with short white hair, glasses, and a pink shirt.
Elva Roy cherishes her independence and doesn’t want anyone with her at the end of her life. She’s considering medically assisted death if she becomes terminally ill.

Some people want to die as they’ve lived — on their own. Among them is 80-year-old Elva Roy, founder of Age-Friendly Arlington, Texas, who has lived alone for 30 years after two divorces.

When I reached out, she told me she’d thought long and hard about dying alone and is toying with the idea of medically assisted death, perhaps in Switzerland, if she becomes terminally ill. It’s one way to retain a sense of control and independence that’s sustained her as a solo ager.

“You know, I don’t want somebody by my side if I’m emaciated or frail or sickly,” Roy said. “I would not feel comforted by someone being there holding my hand or wiping my brow or watching me suffer. I’m really OK with dying by myself.”

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/aging-fear-dying-alone-single-childless-widowhood-divorce/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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I’m Moving Forward and Facing the Uncertainty of Aging /aging/navigating-aging-columnist-retires-faces-uncertainty/ Wed, 15 Jan 2025 10:00:00 +0000 /?post_type=article&p=1960724 It takes a lot of courage to grow old.

I’ve come to appreciate this after conversations with hundreds of older adults over the past eight years for nearly 200 “Navigating Aging” columns.

Time and again, people have described what it’s like to let go of certainties they once lived with and adjust to new circumstances.

These older adults’ lives are filled with change. They don’t know what the future holds except that the end is nearer than it’s ever been.

And yet, they find ways to adapt. To move forward. To find meaning in their lives. And I find myself resolving to follow this path as I ready myself for retirement.

Patricia Estess, 85, of the Brooklyn borough of New York City spoke eloquently about the unpredictability of later life when I reached out to her as I reported a series of columns on older adults who live alone, sometimes known as “solo agers.”

Estess had taken a course on solo aging. “You realize that other people are in the same boat as you are,” she said when I asked what she had learned. “We’re all dealing with uncertainty.”

Consider the questions that older adults — whether living with others or by themselves — deal with year in and out: Will my bones break? Will my thinking skills and memory endure? Will I be able to make it up the stairs of my home, where I’m trying to age in place?

Will beloved friends and family members remain an ongoing source of support? If not, who will be around to provide help when it’s needed?

Will I have enough money to support a long and healthy life, if that’s in the cards? Will community and government resources be available, if needed?

It takes courage to face these uncertainties and advance into the unknown with a measure of equanimity.

“It’s a question of attitude,” Estess told me. “I have honed an attitude of: ‘I am getting older. Things will happen. I will do what I can to plan in advance. I will be more careful. But I will deal with things as they come up.’”

For many people, becoming old alters their sense of identity. They feel like strangers to themselves. Their bodies and minds aren’t working as they used to. They don’t feel the sense of control they once felt.

That requires a different type of courage — the courage to embrace and accept their older selves.

Marna Clarke, a photographer, spent more than a dozen years documenting her changing body and her life with her partner as they grew older. Along the way, she learned to view aging with new eyes.

“Now, I think there’s a beauty that comes out of people when they accept who they are,” she told me in 2022 when she was 82, just before her 93-year-old husband died.

A photo shows Marna Clarke resting her head on her partner's deathbed.
As her partner, Igor Sazevich, lay dying, Marna Clarke says, she “was talking to him and caressing him.” “Then I sat with him and held his very swollen hands,” she says. “Over and over again, I told him I loved him. I know he heard me.”

Arthur Kleinman, a Harvard professor who’s now 83, gained a deeper sense of soulfulness after caring for his beloved wife, who had dementia and eventually died, leaving him grief-stricken.

“We endure, we learn how to endure, how to keep going. We’re marked, we’re injured, we’re wounded. We’re changed, in my case for the better,” he told me when I interviewed him in 2019. He was referring to a newfound sense of vulnerability and empathy he gained as a caregiver.

Herbert Brown, 68, who lives in one of Chicago’s poorest neighborhoods, was philosophical when I met him at his apartment building’s annual barbecue in June.

“I was a very wild person in my youth. I’m surprised I’ve lived this long,” he said. “I never planned on being a senior. I thought I’d die before that happened.”

Truthfully, no one is ever prepared to grow old, including me. (I’m turning 70 in February.)

Chalk it up to denial or the limits of imagination. As May Sarton, who thought deeply about aging, put it so well: Old age is “a foreign country with an unknown language.” I, along with all my similarly aged friends, are surprised we’ve arrived at this destination.

For me, 2025 is a turning point. I’m retiring after four decades as a journalist. Most of that time, I’ve written about our nation’s enormously complex health care system. For the past eight years, I’ve focused on the unprecedented growth of the older population — the most significant demographic trend of our time — and its many implications.

In some ways, I’m ready for the challenges that lie ahead. In many ways, I’m not.

A senior man in a red and black zip up shirt sits on a chair and looks at the camera
Herbert Brown of Chicago says, “I never planned on being a senior. I thought I’d die before that happened.” (Judith Graham/ºÚÁϳԹÏÍø News)
A senior woman with white short hair and a purple turtleneck sweater looks at the camera smiling
Patricia Estess of Brooklyn, New York, says, “You realize that other people are in the same boat as you are. We’re all dealing with uncertainty.” (Patricia Estess)

The biggest unknown is what will happen to my vision. I have moderate macular degeneration in both eyes. Last year, I lost central vision in my right eye. How long will my left eye pick up the slack? What will happen when that eye deteriorates?

Like many people, I’m hoping scientific advances outpace the progression of my condition. But I’m not counting on it. Realistically, I have to plan for a future in which I might become partially blind.

It’ll take courage to deal with that.

Then, there’s the matter of my four-story Denver house, where I’ve lived for 33 years. Climbing the stairs has helped keep me in shape. But that won’t be possible if my vision becomes worse.

So my husband and I are taking a leap into the unknown. We’re renovating the house, installing an elevator, and inviting our son, daughter-in-law, and grandson to move in with us. Going intergenerational. Giving up privacy. In exchange, we hope our home will be full of mutual assistance and love.

There are no guarantees this will work. But we’re giving it a shot.

Without all the conversations I’ve had over all these years, I might not have been up for it. But I’ve come to see that “no guarantees” isn’t a reason to dig in my heels and resist change.

Thank you to everyone who has taken time to share your experiences and insights about aging. Thank you for your openness, honesty, and courage. These conversations will become even more important in the years ahead, as baby boomers like me make their way through their 70s, 80s, and beyond. May the conversations continue.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/navigating-aging-columnist-retires-faces-uncertainty/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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LGBTQ+ People Relive Old Traumas as They Age on Their Own /aging/lgbtq-aging-adults-going-it-alone-relive-trauma/ Tue, 24 Dec 2024 13:00:00 +0000 /?post_type=article&p=1937169 Bill Hall, 71, has been fighting for his life for 38 years. These days, he’s feeling worn out.

Hall contracted HIV, the virus that can cause AIDS, in 1986. Since then, he’s battled depression, heart disease, diabetes, non-Hodgkin lymphoma, kidney cancer, and prostate cancer. This past year, Hall has been hospitalized five times with dangerous infections and life-threatening internal bleeding.

But that’s only part of what Hall, a gay man, has dealt with. Hall was born into the Tlingit tribe in a small fishing village in Alaska. He was separated from his family at age 9 and sent to a government boarding school. There, he told me, he endured years of bullying and sexual abuse that “killed my spirit.”

A man wearing a vest with animal and feather designs on it over his checkered shirt stands and looks at the camera.
Bill Hall, who lives alone in Seattle, contracted HIV in 1986. Since then, he has battled depression, heart disease, diabetes, non-Hodgkin lymphoma, kidney cancer, and prostate cancer. This past year, he’s been hospitalized five times with potentially life-threatening medical crises. (Ernestine Grimm)

Because of the trauma, Hall said, he’s never been able to form an intimate relationship. He contracted HIV from anonymous sex at bath houses he used to visit. He lives alone in Seattle and has been on his own throughout his adult life.

“It’s really difficult to maintain a positive attitude when you’re going through so much,” said Hall, who works with Native American community organizations. “You become mentally exhausted.”

It’s a sentiment shared by many older LGBTQ+ adults — most of whom, like Hall, are trying to manage on their own.

Of the 3 million Americans over age 50 who identify as gay, bisexual, or transgender, about twice as many are single and living alone when compared with their heterosexual counterparts, according to the National Resource Center on LGBTQ+ Aging.

This slice of the older population is expanding rapidly. By 2030, the number of LGBTQ+ seniors is expected to double. Many won’t have partners and most won’t have children or grandchildren to help care for them, indicates.

They face a daunting array of problems, including higher-than-usual rates of anxiety and depression, chronic stress, disability, and chronic illnesses such as heart disease, according to numerous research studies. High rates of smoking, alcohol use, and drug use — all ways people try to cope with stress — contribute to poor health.

Keep in mind, this generation grew up at a time when every state outlawed same-sex relations and when the American Psychiatric Association identified homosexuality as a psychiatric disorder. Many were rejected by their families and their churches when they came out. Then, they endured the horrifying impact of the AIDS crisis.

“Dozens of people were dying every day,” Hall said. “Your life becomes going to support groups, going to visit friends in the hospital, going to funerals.”

It’s no wonder that LGBTQ+ seniors often withdraw socially and experience isolation more commonly than other older adults. “There was too much grief, too much anger, too much trauma — too many people were dying,” said Vincent Crisostomo, director of aging services for the San Francisco AIDS Foundation. “It was just too much to bear.”

In an AARP survey of 2,200 LGBTQ+ adults 45 or older this year, 48% said they felt isolated from others and 45% reported lacking companionship. Almost 80% reported being concerned about having adequate social support as they grow older.

Embracing aging isn’t easy for anyone, but it can be especially difficult for LGBTQ+ seniors who are long-term HIV survivors like Hall.

Of 1.2 million people in the United States, about half are over age 50. By 2030, that’s estimated to rise to 70%.

Christopher Christensen, 72, of Palm Springs, California, has been HIV-positive since May 1981 and is deeply involved with local organizations serving HIV survivors. “A lot of people living with HIV never thought they’d grow old — or planned for it — because they thought they would die quickly,” Christensen said.

Jeff Berry is executive director of the , an alliance of long-term HIV survivors. “Here people are who survived the AIDS epidemic, and all these years later their health issues are getting worse and they’re losing their peers again,” Berry said. “And it’s triggering this post-traumatic stress that’s been underlying for many, many years. Yes, it’s part of getting older. But it’s very, very hard.”

Being on their own, without people who understand how the past is informing current challenges, can magnify those difficulties.

“Not having access to supports and services that are both LGBTQ-friendly and age-friendly is a real hardship for many,” said Christina DaCosta, chief experience officer at , the nation’s largest and oldest organization for older LGBTQ+ adults.

An senior woman wearing a Batman t-shirt sits on a couch and looks at the camera and smiles gently.
Diedra Nottingham was kicked out of her house by her mother at age 14 and spent the next four years on the streets. Today, Nottingham lives alone in a one-bedroom apartment in Stonewall House, an LGBTQ+-friendly elder housing complex in New York City. (Julia Mitchem)
A senior Black man with a white and gray beard smiles at the camera.
Donald Bell, co-chair of the Illinois Commission on LGBTQ Aging, lives alone in a studio apartment in a subsidized LGBTQ+-friendly senior housing complex in Chicago. Bell has very little money, he says, because 30 years ago he left work as a higher-education administrator to care for his elderly parents, who had serious health issues. “The cost of health care bankrupted us,” he says. (Donald Bell)

Diedra Nottingham, a 74-year-old gay woman, lives alone in a one-bedroom apartment in Stonewall House, an LGBTQ+-friendly elder housing complex in New York City. “I just don’t trust people,“ she said. “And I don’t want to get hurt, either, by the way people attack gay people.”

When I first spoke to Nottingham in 2022, she described a post-traumatic-stress-type reaction to so many people dying of covid-19 and the fear of becoming infected. This was a common reaction among older people who are gay, bisexual, or transgender and who bear psychological scars from the AIDS epidemic.

Nottingham was kicked out of her house by her mother at age 14 and spent the next four years on the streets. The only sibling she talks with regularly lives across the country in Seattle. Four partners whom she’d remained close with died in short order in 1999 and 2000, and her last partner passed away in 2003.

When I talked to her in September, Nottingham said she was benefiting from weekly therapy sessions and time spent with a volunteer “friendly visitor” arranged by SAGE. Yet she acknowledged: “I don’t like being by myself all the time the way I am. I’m lonely.”

Donald Bell, a 74-year-old gay Black man who is co-chair of the Illinois Commission on LGBTQ Aging, lives alone in a studio apartment in subsidized LGBTQ+-friendly senior housing in Chicago. He spent 30 years caring for two elderly parents who had serious health issues, while he was also a single father, raising two sons he adopted from a niece.

Bell has very little money, he said, because he left work as a higher-education administrator to care for his parents. “The cost of health care bankrupted us,” he said. (According to SAGE, one-third of older LGBTQ+ adults live at or below 200% of the federal poverty level.) He has hypertension, diabetes, heart disease, and nerve damage in his feet. These days, he walks with a cane.

To his great regret, Bell told me, he’s never had a long-term relationship. But he has several good friends in his building and in the city.

“Of course I experience loneliness,” Bell said when we spoke in June. “But the fact that I am a Black man who has lived to 74, that I have not been destroyed, that I have the sanctity of my own life and my own person is a victory and something for which I am grateful.”

Now he wants to be a model to younger gay men and accept aging rather than feeling stuck in the past. “My past is over,” Bell said, “and I must move on.”

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/lgbtq-aging-adults-going-it-alone-relive-trauma/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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A Centenarian Thrives Living Alone, Active and Engaged /aging/centenarian-thrives-living-alone-older-adults/ Tue, 10 Dec 2024 10:00:00 +0000 “The future is here,” the email announced. Hilda Jaffe, then 88, was letting her children know she planned to sell the family home in Verona, New Jersey. She’d decided to begin life anew — on her own — in a one-bedroom apartment in Hell’s Kitchen in Manhattan.

Fourteen years later, Jaffe, now 102, still lives alone — just a few blocks away from the frenetic flashing lights and crowds that course through Times Square.

She’s the rarest of seniors: a centenarian who is sharp as a tack, who carries grocery bags in each hand when she walks back from her local market, and who takes city buses to see her physicians or attend a matinee at the Metropolitan Opera.

Jaffe cleans her own house, does her own laundry, manages her own finances, and stays in touch with a far-flung network of family and friends via email, WhatsApp, and Zoom. Her son, Richard Jaffe, 78, lives in San Jose, California. Her daughter, Barbara Vendriger, 75, lives in Tel Aviv.

She’s an extraordinary example of an older adult living by herself and thriving.

A photograph of a senior woman standing on the corner of a busy block in the Upper West Side of New York on a cold, but sunny day.
102-year-old Hilda Jaffe negotiates the streets of New York City without a walker or cane. She’s careful about watching the pavement so she doesn’t fall. (Jackie Molloy for ºÚÁϳԹÏÍø News)
A photo taken over the shoulder of a senior woman writing the crossword puzzle.
Jaffe does an acrostic word puzzle in her apartment on the 28th floor of a building in the heart of New York City. She enjoys doing various puzzles, and reading books and magazines. (Jackie Molloy for ºÚÁϳԹÏÍø News)
A photo of a senior woman pointing to pencil marks on a doorway.
Inside Jaffe’s home is a wall where she keeps the heights of all her great-grandchildren. Every time they visit, she sees how much they have grown since she last saw them. (Jackie Molloy for ºÚÁϳԹÏÍø News)

I’ve spoken with dozens of seniors this past year for a series of columns on older Americans living alone. Many struggle with health issues. Many are isolated and vulnerable. But a noteworthy slice of this growing group of seniors maintain a high degree of well-being.

What might account for this, particularly among people in the farthest reaches of old age?

Sofiya Milman is director of Human Longevity Studies at the Institute for Aging Research at Albert Einstein College of Medicine. She studies people known as “superagers” —95 and older. “As a group, they have a very positive outlook on life” and are notably resilient, like Jaffe, she told me.

Qualities associated with resilience in older adults include optimism and hopefulness, an ability to adapt to changing circumstances, meaningful relationships, community connections, and physical activity, according to a growing body of research on this topic.

Jaffe has those qualities in spades, along with a “can-do” attitude.

“I never expected to be 102. I’m as surprised as everybody else that I am here,” she said recently over lunch at a Chinese restaurant just steps from her 30-story apartment building.

Jaffe’s perspective on her longevity is unsentimental. She credits her genetic heritage, luck, and her commitment to “keep moving,” in that order. “You don’t work toward it: It happens. Every day, you get up and you’re a day older,” she said.

A photo of a senior woman wearing winter clothes while pushing a cart in a grocery store.
Jaffe shops at The Food Emporium, a market in easy walking distance from her apartment building in Hell’s Kitchen in New York City. (Jackie Molloy for ºÚÁϳԹÏÍø News)
An over-the-shoulder photograph of a senior woman's hands holding a grocery list.
Jaffe consults a shopping list at The Food Emporium. (Jackie Molloy for ºÚÁϳԹÏÍø News)

This matter-of-fact stance is characteristic of Jaffe’s approach to life. Asked to describe herself, she quickly responded “pragmatic.” That means having a clear-eyed view of what she can and can’t do and making adjustments as necessary.

Living alone suits her, she added, because she likes being independent and doing things her way. “If a problem comes up, I work it out,” Jaffe said. 

In this, she’s like other older adults who have come to terms with their “I’m on my own” status and, for the most part, are doing quite well. 

Still, Jaffe is unusual, to say the least. There are only 101,000 centenarians in the U.S., according to the most recent Census Bureau data. Of this small group, 15% live independently or operate independently while living with someone, according to Thomas Perls, the founder and director of the New England Centenarian Study, the largest study of centenarians in the world. (Jaffe is one of 2,500 centenarians participating in the study.)

About 20% of centenarians are, like Jaffe, free of physical or cognitive impairments, Perls said. An additional 15% have no age-related illnesses such as arthritis or heart disease.

Practically, that means Jaffe doesn’t know anybody like her. Nor do her physicians. “My primary care doctor says, ‘You’re the only centenarian who walks in without an assistant or a cane. You’re off the charts,’” Jaffe said, when I asked about her health.

She has only a few medical conditions — reflux, an occasional irregular heartbeat, osteoporosis, a touch of sciatica, a lung nodule that appeared and then disappeared. She monitors those conditions vigilantly, following her doctors’ advice to the letter.

Every day, Jaffe tries to walk 3,000 steps — outside if the weather is good or inside, making laps in her hallway, if the weather is bad. Her diet is simple: bread, cheese, and decaffeinated coffee for breakfast; a sandwich or eggs for lunch; often chicken and a vegetable or restaurant leftovers for dinner. She never smoked, doesn’t drink alcohol, and sleeps an average of eight hours each night.

A photo of a senior woman wearing winter clothes walking on the sidewalk in the Upper West Side of New York City.
When Jaffe goes to the grocery store, she carries a small list of items she knows she can carry back on her own. (Jackie Molloy for ºÚÁϳԹÏÍø News)

Even more important, Jaffe remains engaged with other people. She has subscriptions to the Metropolitan Opera, the New York Philharmonic, and a chamber music series. She participates in online events and regularly sees new exhibits at four of New York’s premier museums, where she has memberships. She’s in regular contact with family members and friends.

Jaffe also belongs to a book club at her synagogue on Manhattan’s Upper West Side and serves on the synagogue’s adult education committee. For more than a decade, she’s volunteered several times a week as a docent at the New York Public Library’s main branch on Fifth Avenue.

“Loneliness, it’s not an issue,” she said. “I have enough to do within my capability.”

On a recent Tuesday afternoon, I followed Jaffe as she led visitors from Mexico, England, Pittsburgh, and New Jersey through the library’s “Treasures” exhibit. She was a wealth of information about extraordinary objects such as a Gutenberg Bible from 1455 (one of the first books printed in Europe using movable type), Charles Dickens’ writing desk, and an enormous folio of John James Audubon’s “The Birds of America.” She spoke without notes, articulately.

When I asked about the future, Jaffe said she doesn’t worry about what comes next. She just lives day to day.

That change in perspective is common in later life. “Focusing on the present and experiencing the here and now becomes more important to older adults,” said Laura Carstensen, founding director of Stanford University’s Center on Longevity, who has studied emotional changes that accompany aging for decades. “As does savoring positive things in their lives.”

A photo of a senior woman wearing winter clothes picking up food from a deli counter.
The Food Emporium is a short walk from Jaffe’s apartment building. (Jackie Molloy for ºÚÁϳԹÏÍø News)

Carstensen’s research group was the first to show that older adults were more resilient emotionally during the covid-19 pandemic than young or middle-aged adults. “Older people are better able to cope with difficulties,” she said. In part, this is because of skills and perspective gained over the course of a lifetime. And, in part, it’s because “when we see our future as shorter, it feels more manageable.”

Jaffe certainly understands the value of facing forward and letting go of the past. Losing her husband, Gerald Jaffe, in 2005 after 63 years of marriage was hard, she admitted, but relinquishing her life and most of her belongings in New Jersey five years later was easy.

“It was enough. We had done what we had wanted to do there. I was 88 at that point and so many people were gone. The world had changed,” she told me. “I didn’t feel a sense of loss.”

“It was so exciting for me, being in New York,” she continued. “Every day you could do something — or nothing. This location couldn’t be better. The building is safe and well maintained, with lots of staff. Everything is here, close by: a market, the pharmacy, restaurants, buses. In a house in New Jersey, I would be isolated. Here, I look out the window and I see people.”

As for the future, who knows what that will hold? “My joke is I’m going to be done in by a bicycle delivery person cutting through the pedestrian crosswalk,” Jaffe said. Until that or something else happens, “I live in a state of surprise. Every day is a new day. I don’t take it for granted at all.”

A portrait of a senior woman smiling as she eats breakfast at a New York City diner.
Like many New Yorkers, Jaffe has a favorite lunch spot: the Westway Diner, in her neighborhood. Staffers there greet her by name. (Jackie Molloy for ºÚÁϳԹÏÍø News)

We’re eager to hear from readers about questions you’d like answered, problems you’ve been having with your care, and advice you need in dealing with the health care system. Visit  to submit your requests or tips.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/centenarian-thrives-living-alone-older-adults/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Resources Are Expanding for Older Adults on Their Own /aging/aging-alone-resources-older-adults-solo-agers/ Mon, 09 Dec 2024 10:00:00 +0000 Jeff Kromrey, 69, will sit down with his daughter the next time she visits and show her how to access his online accounts if he has an unexpected health crisis.

Gayle Williams-Brett, 69, plans to tackle a project she’s been putting off for months: organizing all her financial information.

Michael Davis, 71, is going to draft a living will and ask a close friend to be his health care surrogate and executor of his estate.

These seniors have been inspired to take these and other actions by an innovative course for such “solo agers”: Aging Alone Together, , a social services agency in New York City.

Most of them live alone, without a spouse, a partner, or adult children to help them manage as they grow older.

Until a few years ago, few resources were available for this growing slice of the older population.

Now, there are several Facebook groups for solo agers, as well as in-person groups springing up around the country, conferences and webinars, a national clearinghouse of resources, and an expanding array of books on the topic.

All address these seniors’ need to connect with other people, prevent isolation, and prepare for a future when they might become less robust, encounter more health issues, and need more assistance.

“Older adults who cannot rely on family members need to be very intentional about creating support systems and putting other plans in place,” said Ailene Gerhardt, a patient advocate in Boston who created the three years ago.

In a , AARP — which broadens the definition of older Americans to people 50 and older — examined those who live alone and don’t have living children. Ten percent of those 50 or older meet this definition, AARP estimates. An additional 11% have at least one living child but are estranged from them. And 13% have children who they believe can’t or won’t help them manage their finances and health care.

Preparing in isolation for the future can be daunting. “If solo agers don’t feel they have people to talk to as they craft their aging plan, they often will skip the whole process,” said Gerhardt, who endorses a group planning model for these seniors.

That’s the format Dorot has adopted for Aging Alone Together, which is available nationally online free of charge and in person in New York City. More than 1,000 people have participated in the program since it launched in 2021. Dorot is working with partners around the country to expand its reach.

The program consists of six 90-minute, interactive weekly sessions that focus on these seniors’ key concerns: building communities of support, figuring out where to live, completing advance care directives such as living wills, and getting financial and legal affairs in order.

One goal is to help participants identify their priorities and overcome the fear and hesitation that so many older adults feel when peering into their uncertain futures, said Claire Nisen, a Dorot staffer who runs the program. Another is to offer practical tools, advice, and resources that can spur people to action.

Yet another is to foster a sense of community that promotes a “can do” attitude. As Nisen said repeatedly when I took the course in September and October, “Solo aging doesn’t mean aging alone.”

That message resonated deeply with Williams-Brett, who lives with her severely disabled mother, 97, in a two-story brownstone in Brooklyn. Williams-Brett, who is divorced and never had children, expects to be on her own as she grows older. Her mother had a devastating stroke three years ago, and since then Williams-Brett has been her full-time caregiver.

Overwhelmed by everything on her to-do list — declutter the house, make home repairs, straighten out her finances, safeguard her mother’s health — Williams-Brett told me she’d been struggling with shame and fear. “All the time, I feel I’m not doing what I should be well enough,” she said.

Michael Davis, shown in an undated photo, is a Manhattan artist who lives alone. He says his most pressing concern is “finding something to do that’s worthwhile” now that arthritis has made it difficult for him to paint. “There are days that go by when I don’t say a word to anyone.” (Michael Davis)
Jeff Kromrey, who lives alone in Tampa, Florida, knows he’s fortunate to be healthy and financially stable. He’s exceptionally close to his adult daughter, who will be his health care and legal decision-maker should he become incapacitated. (Jeff Kromrey)

Hearing other seniors voice similar concerns during Aging Alone Together sessions, Williams-Brett realized she didn’t judge them as she was judging herself. “I thought, we all have issues we’re dealing with,” she said. “You don’t have anything to feel ashamed of.”

Kromrey, who lives alone in Tampa, Florida, knows he’s fortunate to be healthy, financially stable, and very close with his adult daughter, who will be his health care and legal decision-maker should he become incapacitated. Kromrey, widowed nine years ago, also has three sons — two in South Carolina and one in West Palm Beach, Florida.

While participating in Aging Alone Together, Kromrey realized he had assumed he’d never have a health crisis such as a stroke or heart attack — a common form of denial.

His daughter and her husband planned to travel from North Carolina to join Kromrey over Thanksgiving. During that visit, Kromrey said, he would give her passwords to his computer and online accounts, explain his system for keeping track of bills, and show her where other important files are.

“That way, she’ll just be able to take right over if something unexpected occurs,” he said.

Davis is an artist who never married, doesn’t have siblings and lives alone in Manhattan. In a phone conversation, he said his most pressing concern is “finding something to do that’s worthwhile” now that arthritis has made it difficult for him to paint.

In some ways, Davis is prepared for the future. He has a long-term care insurance policy that will pay for help in the home and a rent-regulated apartment in a building with an elevator. But he recognizes that he’s become too isolated as his artistic activities have waned.

“There are days that go by when I don’t say a word to anyone,” Davis acknowledged. “I have my friends, but they have their own lives, with their children and grandchildren. I’m turning to Dorot for more social contact. And Aging Alone Together has helped me focus on the here and now.”

For more information about Aging Alone Together, email agingalonetogether@dorotusa.org or visit .

A national clearinghouse of resources for solo agers and information about solo-ager groups in the United States is available at the website.

The National Council on Aging to resources and support for older adults living alone.

Facebook groups for solo agers include , , , and . Another online community is .

Books about planning for solo aging include “Essential Retirement Planning for Solo Agers,” “Solo and Smart,” “Who Will Take Care of Me When I’m Old?” and “The Complete Eldercare Planner.”

about planning for solo aging can be found on YouTube, including from CJE SeniorLife.

We’re eager to hear from readers about questions you’d like answered, problems you’ve been having with your care, and advice you need in dealing with the health care system. Visit  to submit your requests or tips.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/aging-alone-resources-older-adults-solo-agers/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Homebound Seniors Living Alone Often Slip Through Health System’s Cracks /aging/seniors-homebound-living-alone-health-risks-new-york/ Mon, 02 Dec 2024 09:00:00 +0000 /?post_type=article&p=1929131 Carolyn Dickens, 76, was sitting at her dining room table, struggling to catch her breath as her physician looked on with concern.

“What’s going on with your breathing?” asked Peter Gliatto, director of Mount Sinai’s Visiting Doctors Program.

“I don’t know,” she answered, so softly it was hard to hear. “Going from here to the bathroom or the door, I get really winded. I don’t know when it’s going to be my last breath.”

Dickens, a lung cancer survivor, lives in central Harlem, barely getting by. She has serious lung disease and high blood pressure and suffers regular fainting spells. In the past year, she’s fallen several times and dropped to 85 pounds, a dangerously low weight.

And she lives alone, without any help — a highly perilous situation.

Across the country, about 2 million adults 65 and older are completely or mostly homebound, while an additional 5.5 million seniors can get out only with significant difficulty or assistance. This is almost surely an undercount, since the data is from more than a dozen years ago.

It’s a population whose numbers far exceed those living in nursing homes — about 1.2 million — and yet it receives much less attention from policymakers, legislators, and academics who study aging.

Consider some eye-opening statistics about completely homebound seniors from a study published in 2020 in : Nearly 40% have five or more chronic medical conditions, such as heart or lung disease. Almost 30% are believed to have “probable dementia.” Seventy-seven percent have difficulty with at least one daily task such as bathing or dressing.

Almost 40% live by themselves.

That “on my own” status magnifies these individuals’ already considerable vulnerability, something that became acutely obvious during the covid-19 outbreak, when the number of sick and disabled seniors confined to their homes doubled.

“People who are homebound, like other individuals who are seriously ill, rely on other people for so much,” said Katherine Ornstein, director of the Center for Equity in Aging at the Johns Hopkins School of Nursing. “If they don’t have someone there with them, they’re at risk of not having food, not having access to health care, not living in a safe environment.”

Research has shown that older homebound adults are less likely to receive regular primary care than other seniors. They’re also more likely to end up in the hospital with medical crises that might have been prevented if someone had been checking on them.

To better understand the experiences of these seniors, I accompanied Gliatto on some home visits in New York City. Mount Sinai’s Visiting Doctors Program, established in 1995, is one of the oldest in the nation. who rarely or never leave home have access to this kind of home-based primary care.

Gliatto and his staff — seven part-time doctors, three nurse practitioners, two nurses, two social workers, and three administrative staffers — serve about 1,000 patients in Manhattan each year.

These patients have complicated needs and require high levels of assistance. In recent years, Gliatto has had to cut staff as Mount Sinai has reduced its financial contribution to the program. It doesn’t turn a profit, because reimbursement for services is low and expenses are high.

First, Gliatto stopped in to see Sandra Pettway, 79, who never married or had children and has lived by herself in a two-bedroom Harlem apartment for 30 years.

Pettway has severe spinal problems and back pain, as well as Type 2 diabetes and depression. She has difficulty moving around and rarely leaves her apartment. “Since the pandemic, it’s been awfully lonely,” she told me.

When I asked who checks in on her, Pettway mentioned her next-door neighbor. There’s no one else she sees regularly.

Pettway told the doctor she was increasingly apprehensive about an upcoming spinal surgery. He reassured her that Medicare would cover in-home nursing care, aides, and physical therapy services.

“Someone will be with you, at least for six weeks,” he said. Left unsaid: Afterward, she would be on her own. (The surgery in April went well, Gliatto reported later.)

The doctor listened carefully as Pettway talked about her memory lapses.

“I can remember when I was a year old, but I can’t remember 10 minutes ago,” she said. He told her that he thought she was managing well but that he would arrange testing if there was further evidence of cognitive decline. For now, he said, he’s not particularly worried about her ability to manage on her own.

A doctor performs a visual exam on a senior female patient
Physician Peter Gliatto visits Marianne Gluck Morrison in her cluttered Greenwich Village apartment. Morrison said she’d been feeling dizzy over the past few weeks, and Gliatto gave her a basic neurological exam, asking her to follow his fingers with her eyes and touch her fingers to her nose. “I think your problem is with your ear, not your brain,” he tells her, describing symptoms of vertigo. (Judith Graham for ºÚÁϳԹÏÍø News)
A doctor performs at home medical assessment of a senior female.
Sandra Pettway never married or had children. She’s lived by herself in a two-bedroom Harlem apartment for 30 years. Pettway has severe spinal problems, back pain, Type 2 diabetes, and depression. She has difficulty moving around and rarely leaves her apartment. “Since the pandemic, it’s been awfully lonely,” she says. (Judith Graham for ºÚÁϳԹÏÍø News)

Several blocks away, Gliatto visited Dickens, who has lived in her one-bedroom Harlem apartment for 31 years. Dickens told me she hasn’t seen other people regularly since her sister, who used to help her out, had a stroke. Most of the neighbors she knew well have died. Her only other close relative is a niece in the Bronx whom she sees about once a month.

Dickens worked with special-education students for decades in New York City’s public schools. Now she lives on a small pension and Social Security — too much to qualify for Medicaid. (Medicaid, the program for low-income people, will pay for aides in the home. Medicare, which covers people over age 65, does not.) Like Pettway, she has only a small fixed income, so she can’t afford in-home help.

Every Friday, God’s Love We Deliver, an organization that prepares medically tailored meals for sick people, delivers a week’s worth of frozen breakfasts and dinners that Dickens reheats in the microwave. She almost never goes out. When she has energy, she tries to do a bit of cleaning.

Without the ongoing attention from Gliatto, Dickens doesn’t know what she’d do. “Having to get up and go out, you know, putting on your clothes, it’s a task,” she said. “And I have the fear of falling.”

The next day, Gliatto visited Marianne Gluck Morrison, 73, a former survey researcher for New York City’s personnel department, in her cluttered Greenwich Village apartment. Morrison, who doesn’t have any siblings or children, was widowed in 2010 and has lived alone since.

Morrison said she’d been feeling dizzy over the past few weeks, and Gliatto gave her a basic neurological exam, asking her to follow his fingers with her eyes and touch her fingers to her nose.

“I think your problem is with your ear, not your brain,” he told her, describing symptoms of vertigo.

Because she had severe wounds on her feet related to Type 2 diabetes, Morrison had been getting home health care for several weeks through Medicare. But those services — help from aides, nurses, and physical therapists — were due to expire in two weeks.

“I don’t know what I’ll do then, probably just spend a lot of time in bed,” Morrison told me. Among her other medical conditions: congestive heart failure, osteoarthritis, an irregular heartbeat, chronic kidney disease, and depression.

Morrison hasn’t left her apartment since November 2023, when she returned home after a hospitalization and several months at a rehabilitation center. Climbing the three steps that lead up into her apartment building is simply too hard.

“It’s hard to be by myself so much of the time. It’s lonely,” she told me. “I would love to have people see me in the house. But at this point, because of the clutter, I can’t do it.”

When I asked Morrison who she feels she can count on, she listed Gliatto and a mental health therapist from Henry Street Settlement, a social services organization. She has one close friend she speaks with on the phone most nights.

“The problem is I’ve lost eight to nine friends in the last 15 years,” she said, sighing heavily. “They’ve died or moved away.”

Bruce Leff, director of the Center for Transformative Geriatric Research at the Johns Hopkins School of Medicine, is a leading advocate of home-based medical care. “It’s kind of amazing how people find ways to get by,” he said when I asked him about homebound older adults who live alone. “There’s a significant degree of frailty and vulnerability, but there is also substantial resilience.”

With the rapid expansion of the aging population in the years ahead, Leff is convinced that more kinds of care will move into the home, everything from rehab services to palliative care to hospital-level services.

“It will simply be impossible to build enough hospitals and health facilities to meet the demand from an aging population,” he said.

But that will be challenging for homebound older adults who are on their own. Without on-site family caregivers, there may be no one around to help manage this home-based care.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/seniors-homebound-living-alone-health-risks-new-york/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Older Americans Living Alone Often Rely on Neighbors or Others Willing To Help /aging/older-americans-living-alone-help-neighbors-minneapolis-chicago-boulder/ Tue, 12 Nov 2024 09:00:00 +0000 Donald Hammen, 80, and his longtime next-door neighbor in south Minneapolis, Julie McMahon, have an understanding. Every morning, she checks to see whether he’s raised the blinds in his dining room window. If not, she’ll call Hammen or let herself into his house to see what’s going on.

Should McMahon find Hammen in a bad way, she plans to contact his sister-in-law, who lives in a suburb of Des Moines. That’s his closest relative. Hammen never married or had children, and his younger brother died in 2022.

Although Hammen lives alone, a web of relationships binds him to his city and his community — neighbors, friends, former co-workers, fellow volunteers with an advocacy group for seniors, and fellow members of a group of solo agers. McMahon is an emergency contact, as is a former co-worker. When Hammen was hit by a car in February 2019, another neighbor did his laundry. A friend came over to keep him company. Other people went on walks with Hammen as he got back on his feet.

Those connections are certainly sustaining. Yet Hammen has no idea who might care for him should he become unable to care for himself.

“I’ll cross that bridge when I come to it,” he told me.

These are fundamental questions for older adults who live alone: Who will be there for them, for matters large and small? Who will help them navigate the ever more complex health care system and advocate on their behalf? Who will take out the garbage if it becomes too difficult to carry? Who will shovel the snow if a winter storm blows through?

American society rests on an assumption that families take care of their own. But 15 million Americans 50 and older didn’t have any close family — spouses, partners, or children — in 2015, the latest year for which reliable estimates are available. Most lived alone. By 2060, that number is expected to swell to 21 million.

Beyond that, millions of seniors living on their own aren’t geographically close to adult children or other family members. Or they have difficult, strained relationships that keep them from asking for support.

These older adults must seek assistance from other quarters when they need it. Often they turn to neighbors, friends, church members, or community groups — or paid help, if they can afford it.

And often, they simply go without, leaving them vulnerable to isolation, depression, and deteriorating health.

When seniors living alone have no close family, can nonfamily helpers be an adequate substitute? This hasn’t been well studied.

“We’re just beginning to do a better job of understanding that people have a multiplicity of connections outside their families that are essential to their well-being,” said Sarah Patterson, a demographer and sociologist at the Institute for Social Research at the University of Michigan.

The takeaway from a noteworthy by researchers at Emory University, Johns Hopkins University, and the Icahn School of Medicine at Mount Sinai was this: Many seniors adapt to living solo by weaving together local social networks of friends, neighbors, nieces and nephews, and siblings (if they’re available) to support their independence.

A studio portrait of Linda Camp, a senior woman with short blonde-gray hair and glasses.
Linda Camp, a former administrator with the city of St. Paul, Minnesota, has written several reports about solo agers. But she was still surprised by how much help she required this summer when she had cataract surgery on both eyes. Camp was fortunate — she has a sizable network of former co-workers, neighbors, and friends. “What I tell people when I talk about solos is that all kinds of connections have value,” she says. (Lifetouch LLC)

Still, finding reliable local connections isn’t always easy. And nonfamily helpers may not be willing or able to provide consistent, intense hands-on care if that becomes necessary.

When AARP surveyed in 2022, only 25% said they could count on someone to help them cook, clean, get groceries, or perform other household tasks if needed. Just 38% said they knew someone who could help manage ongoing care needs. (AARP defined solo agers as people 50 and older who aren’t married, don’t have living children, and live alone.)

Linda Camp, 73, a former administrator with the city of St. Paul, Minnesota, who never married or had children, has for the Citizens League in St. Paul about growing old alone. Yet she was still surprised by how much help she required this summer when she had cataract surgery on both eyes.

A former co-worker accompanied Camp to the surgery center twice and waited there until the procedures were finished. A relatively new friend took her to a follow-up appointment. An 81-year-old downstairs neighbor agreed to come up if Camp needed something. Other friends and neighbors also chipped in.

Camp was fortunate — she has a sizable network of former co-workers, neighbors, and friends. “What I tell people when I talk about solos is all kinds of connections have value,” she said.

Michelle Wallace, 75, a former technology project manager, lives alone in a single-family home in Broomfield, Colorado. She has worked hard to assemble a local network of support. Wallace has been divorced for nearly three decades and doesn’t have children. Though she has two sisters and a brother, they live far away.

A portrait of Michelle Wallace, a senior woman with shoulder length, straight gray hair and glasses.
Michelle Wallace, a former technology project manager, lives alone in a single-family home in Broomfield, Colorado. She describes herself as happily unpartnered. “Coupling isn’t for me,” she says. “I need my space and my privacy too much.” Instead, Wallace has cultivated relationships with several people she met through local groups for solo agers. Many have become close friends.

Wallace describes herself as happily unpartnered. “Coupling isn’t for me,” she told me when we first talked. “I need my space and my privacy too much.”

Instead, she’s cultivated relationships with several people she met through local groups for solo agers. Many have become her close friends. Two of them, both in their 70s, are “like sisters,” Wallace said. Another, who lives just a few blocks away, has agreed to become a “we’ll help each other out when needed” partner.

“In our 70s, solo agers are looking for support systems. And the scariest thing is not having friends close by,” Wallace told me. “It’s the local network that’s really important.”

Gardner Stern, 96, who lives alone on the 24th floor of the Carl Sandburg Village condominium complex just north of downtown Chicago, has been far less deliberate. He never planned for his care needs in older age. He just figured things would work out.

They have, but not as Stern predicted.

The person who helps him the most is his third wife, Jobie Stern, 75. The couple went through an acrimonious divorce in 1985, but now she goes to all his doctor appointments, takes him grocery shopping, drives him to physical therapy twice a week and stops in every afternoon to chat for about an hour.

She’s also Gardner’s neighbor — she lives 10 floors above him in the same building.

Jobie Stern, a senior woman with blonde hair, stands in a room and wears a green jacket.
Jobie Stern, Gardner Stern’s ex-wife, lives 10 floors above him in the same condominium complex. She goes to all of his doctor appointments, takes him grocery shopping, drives him to physical therapy twice a week, and stops in every afternoon to chat for about an hour. (Judith Graham for ºÚÁϳԹÏÍø News)
Joy Loverde, an older woman with shoulder length gray hair and glasses, stands beside Gardner Stern, a senior man wearing glasses and a suit jacket. They are sitting down at a table with a white tablecloth.
Gardner Stern (right) lives alone in a Chicago condominium complex. He never planned for his care needs in older age. He just figured things would work out, one way or another. Joy Loverde, an elder-care specialist, lives in the same building and is Stern’s “tell it like it is” friend. Loverde helped Stern decide to give up driving and persuaded him to have a walk-in shower with a bench installed in his bathroom. (Joy Loverde)

Why does she do it? “I guess because I moved into the building and he’s very old and he’s a really good guy and we have a child together,” she told me. “I get happiness knowing he’s doing as well as possible.”

Over many years, she said, she and Gardner have put their differences aside.

“Never would I have expected this of Jobie,” Gardner told me. “I guess time heals all wounds.”

Gardner’s other main local connections are Joy Loverde, 72, an author of elder-care books, and her 79-year-old husband, who live on the 28th floor. Gardner calls Loverde his “tell it like it is” friend — the one who helped him decide it was time to stop driving, the one who persuaded him to have a walk-in shower with a bench installed in his bathroom, the one who plays Scrabble with him every week and offers practical advice whenever he has a problem.

“I think I would be in an assisted living facility without her,” Gardner said.

There’s also family: four children, all based in Los Angeles, eight grandchildren, mostly in L.A., and nine great-grandchildren. Gardner sees most of this extended clan about once a year and speaks to them often, but he can’t depend on them for his day-to-day needs.

For that, Loverde and Jobie are an elevator ride away. “I’ve got these wonderful people who are monitoring my existence, and a big-screen TV, and a freezer full of good frozen dinners,” Gardner said. “It’s all that I need.”

As I explore the lives of older adults living alone in the next several months, I’m eager to hear from people who are in this situation. If you’d like to share your stories, please send them to khn.navigatingaging@gmail.com.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/older-americans-living-alone-help-neighbors-minneapolis-chicago-boulder/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Millions of Aging Americans Are Facing Dementia by Themselves /aging/navigating-aging-alone-dementia/ Tue, 15 Oct 2024 09:00:00 +0000 /?post_type=article&p=1920042 Sociologist Elena Portacolone was taken aback. Many of the older adults in San Francisco she visited at home for a research project were confused when she came to the door. They’d forgotten the appointment or couldn’t remember speaking to her.

It seemed clear they had some type of cognitive impairment. Yet they were living alone.

Portacolone, an associate professor at the University of California-San Francisco, wondered how common this was. Had anyone examined this group? How were they managing?

When she reviewed the research literature more than a decade ago, there was little there. “I realized this is a largely invisible population,” she said.

Portacolone got to work and now leads the at UCSF. The project that at least 4.3 million people 55 or older who have cognitive impairment or dementia live alone in the United States.

About half have trouble with daily activities such as bathing, eating, cooking, shopping, taking medications, and managing money, according to their research. But only 1 in 3 received help with at least one such activity.

Compared with other older adults who live by themselves, people living alone with cognitive impairment are older, more likely to be women, and disproportionately Black or Latino, with lower levels of education, wealth, and homeownership. Yet for publicly funded programs such as Medicaid that pay for aides to provide services in the home.

In a health care system that assumes older adults have family caregivers to help them, “we realized this population is destined to fall through the cracks,” Portacolone said.

Imagine what this means. As memory and thinking problems accelerate, these seniors can lose track of bills, have their electricity shut off, or be threatened with eviction. They might stop shopping (it’s too overwhelming) or cooking (it’s too hard to follow recipes). Or they might be unable to communicate clearly or navigate automated phone systems.

A variety of other problems can ensue, including social isolation, malnutrition, self-neglect, and susceptibility to scams. Without someone to watch over them, older adults on their own may experience worsening health without anyone noticing or struggle with dementia without ever being diagnosed.

Should vulnerable seniors live this way?

For years, Portacolone and her collaborators nationwide have followed nearly 100 older adults with cognitive impairment who live alone. She listed some concerns people told researchers they worried most about: “Who do I trust? When is the next time I’m going to forget? If I think I need more help, where do I find it? How do I hide my forgetfulness?”

Jane Lowers, an assistant professor at the Emory University School of Medicine, has been studying “kinless” adults in the early stages of dementia — those without a live-in partner or children nearby. Their top priority, she told me, is “remaining independent for as long as possible.”

Seeking to learn more about these seniors’ experiences, I contacted the National Council of Dementia Minds. The organization last year started a biweekly online group for people living alone with dementia. Its staffers arranged a Zoom conversation with five people, all with early-to-moderate dementia.

One was Kathleen Healy, 60, who has significant memory problems and lives alone in Fresno, California.

“One of the biggest challenges is that people don’t really see what’s going on with you,” she said. “Let’s say my house is a mess or I’m sick or I’m losing track of my bills. If I can get myself together, I can walk out the door and nobody knows what’s going on.”

An administrator with the city of Fresno for 28 years, Healy said she had to retire in 2019 “because my brain stopped working.” With her pension, she’s able to cover her expenses, but she doesn’t have significant savings or assets.

Healy said she can’t rely on family members who have troubles of their own. (Her 83-year-old mother has dementia and lives with Healy’s sister.) The person who checks on her most frequently is an ex-boyfriend.

“I don’t really have anybody,” she said, choking up.

David West, 62, is a divorced former social worker with , which can impair thinking and concentration and cause hallucinations. He lives alone in an apartment in downtown Fort Worth, Texas.

“I will not survive this in the end — I know that — but I’m going to meet this with resilience,” he said when I spoke with him by phone in June.

Since his diagnosis nearly three years ago, West has filled his life with exercise and joined three dementia support groups. He spends up to 20 hours a week volunteering, at a restaurant, a food bank, a museum, and .

Still, West knows that his illness will progress and that this period of relative independence is limited. What will he do then? Although he has three adult children, he said, he can’t expect them to take him in and become dementia caregivers — an extraordinarily stressful, time-intensive, financially draining commitment.

“I don’t know how it’s going to work out,” he said.

Denise Baker, 80, a former CIA analyst, lives in a 100-year-old house in Asheville, North Carolina, with her dog, Yolo. She has cognitive problems related to a stroke 28 years ago, Alzheimer’s disease, and serious vision impairment that prevents her from driving. Her adult daughters live in Massachusetts and Colorado.

“I’m a very independent person, and I find that I want to do everything I possibly can for myself,” Baker told me, months before Asheville was ravaged by severe flooding. “It makes me feel better about myself.”

She was lucky in the aftermath of Hurricane Helene: Baker lives on a hill in West Asheville that was untouched by floodwaters. In the week immediately after the storm, she filled water jugs every day at an old well near her house and brought them back in a wheelbarrow.  Though her power was out, she had plenty of food and neighbors looked in on her. 

“I’m absolutely fine,” she told me on the phone in early October after a member of drove to Baker’s house to check in on her, upon my request. Baker is on the steering committee of that organization.

Baker once found it hard to ask for assistance, but these days she relies routinely on friends and hired help. A few examples: Elaine takes her grocery shopping every Monday. Roberta comes once a month to help with her mail and finances. Jack mows her lawn. Helen offers care management advice. Tom, a cab driver she connected with through Buncombe County’s transportation program for seniors, is her go-to guy for errands.

Her daughter Karen in Boston has the authority to make legal and health care decisions when Baker can no longer do so. When that day comes — and Baker knows it will — she expects her long-term care insurance policy to pay for home aides or memory care. Until then, “I plan to do as much as I can in the state I’m in,” she said.

Much can be done to better assist older adults with dementia who are on their own, said Elizabeth Gould, co-director of the National Alzheimer’s and Dementia Resource Center at RTI International, a nonprofit research institute. “If health care providers would just ask ‘Who do you live with?’” she said, “that could open the door to identifying who might need more help.”

We’re eager to hear from readers about questions you’d like answered, problems you’ve been having with your care, and advice you need in dealing with the health care system. Visit  to submit your requests or tips.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/navigating-aging-alone-dementia/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Older Men’s Connections Often Wither When They’re on Their Own /aging/older-men-connections-isolation-loneliness-navigating-aging/ Thu, 10 Oct 2024 09:00:00 +0000 /?post_type=article&p=1917945 At age 66, South Carolina physician Paul Rousseau decided to retire after tending for decades to the suffering of people who were seriously ill or dying. It was a difficult and emotionally fraught transition.

“I didn’t know what I was going to do, where I was going to go,” he told me, describing a period of crisis that began in 2017.

Seeking a change of venue, Rousseau moved to the mountains of North Carolina, the start of an extended period of wandering. Soon, a sense of emptiness enveloped him. He had no friends or hobbies — his work as a doctor had been all-consuming. Former colleagues didn’t get in touch, nor did he reach out.

His wife had passed away after a painful illness a decade earlier. Rousseau was estranged from one adult daughter and in only occasional contact with another. His isolation mounted as his three dogs, his most reliable companions, died.

Rousseau was completely alone — without friends, family, or a professional identity — and overcome by a sense of loss.

“I was a somewhat distinguished physician with a 60-page resume,” Rousseau, now 73, wrote in the Journal of the American Geriatrics Society in May. “Now, I’m ‘no one,’ a retired, forgotten old man who dithers away the days.”

In some ways, older men living alone are disadvantaged compared with older women in similar circumstances. Research shows that men tend to have fewer friends than women and be less inclined to make new friends. Often, they’re reluctant to ask for help.

“Men have a harder time being connected and reaching out,” said , a psychiatrist who directs the Harvard Study of Adult Development, which has traced the arc of hundreds of men’s lives over a span of more than eight decades. The men in the study who fared the worst, Waldinger said, “didn’t have friendships and things they were interested in — and couldn’t find them.” He recommends that men invest in their “social fitness” in addition to their physical fitness to ensure they have satisfying social interactions.

Slightly more than 1 in every 5 men ages 65 to 74 live alone, according to . That rises to nearly 1 in 4 for those 75 or older. Nearly 40% of these men are divorced, 31% are widowed, and 21% never married.

That’s a significant change from 2000, when only 1 in 6 older men lived by themselves. Longer life spans for men and rising rates are contributing to the trend. It’s difficult to find information about this group — which is dwarfed by the number of women who live alone — because it hasn’t been studied in depth. But psychologists and psychiatrists say these older men can be quite vulnerable.

When men are widowed, their health and well-being tend to decline more than women’s.

“Older men have a tendency to ruminate, to get into our heads with worries and fears and to feel more lonely and isolated,” said Jed Diamond, 80, a therapist and the author of “” and “.”

A man in a cap and tshirt is seated on a chair
The Rev. Johnny Walker, 76, lives on Chicago’s West Side. Twice divorced, he has lived on his own for five years. He said he finds solace in religion: “When I wake up in the morning, that’s a new blessing. I just thank God that he has brought me this far.” (Judith Graham for ºÚÁϳԹÏÍø News)
A man with white hair and a beard stands next to a brown-haired woman
Verne Ostrander lives alone in the small town of Willits, California. His second wife, Cindy, died of cancer four years ago. When Ostrander isn’t painting watercolors, composing music, or playing guitar, “I fall into this lonely state, and I cry quite a bit,” he said. “I don’t ignore those feelings. I let myself feel them. It’s like therapy.” (Verne Ostrander)

Add in the decline of civic institutions where men used to congregate — think of the Elks or the Shriners — and older men’s reduced ability to participate in athletic activities, and the result is a lack of stimulation and the loss of a sense of belonging.

Depression can ensue, fueling excessive alcohol use, accidents, or, in the most extreme cases, suicide. Of all age groups in the United States, men over age 75 have the , by far.

For this column, I spoke at length to several older men who live alone. All but two (who’d been divorced) were widowed. Their experiences don’t represent all men who live alone. But still, they’re revealing.

The first person I called was Art Koff, 88, of Chicago, a longtime marketing executive I’d known for several years. When I reached out in January, I learned that Koff’s wife, Norma, had died the year before, leaving him hobbled by grief. Uninterested in eating and beset by unremitting loneliness, Koff lost 45 pounds.

“I’ve had a long and wonderful life, and I have lots of family and lots of friends who are terrific,” Koff told me. But now, he said, “nothing is of interest to me any longer.”

“I’m not happy living this life,” he said.

Nine days later, I learned that Koff had died. His nephew, Alexander Koff, said he had passed out and was gone within a day. The death certificate cited “end stage protein calorie malnutrition” as the cause.

The transition from being coupled to being single can be profoundly disorienting for older men. Lodovico Balducci, 80, was married to his wife, Claudia, for 52 years before she died in October 2023. Balducci, a renowned physician known as the “patriarch of geriatric oncology,” in the Journal of the American Geriatrics Society, likening Claudia’s death to an “amputation.”

“I find myself talking to her all the time, most of the time in my head,” Balducci told me in a phone conversation. When I asked him whom he confides in, he admitted, “Maybe I don’t have any close friends.”

Disoriented and disorganized since Claudia died, he said his “anxiety has exploded.”

A man in a white long sleeved t-shirt pets a large brown dog
Paul Rousseau pets his neighbor’s dog, Obie, at the fish hatchery where he volunteers in Jackson, Wyoming. (Amber Baesler for ºÚÁϳԹÏÍø News)

We spoke in late February. Two weeks later, Balducci moved from Tampa to New Orleans, to be near his son and daughter-in-law and their two teenagers.

“I am planning to help as much as possible with my grandchildren,” he said. “Life has to go on.”

Verne Ostrander, a carpenter in the small town of Willits, California, about 140 miles north of San Francisco, was reflective when I spoke with him, also in late February. His second wife, Cindy Morninglight, died four years ago after a long battle with cancer.

“Here I am, almost 80 years old — alone,” Ostrander said. “Who would have guessed?”

When Ostrander isn’t painting watercolors, composing music, or playing guitar, “I fall into this lonely state, and I cry quite a bit,” he told me. “I don’t ignore those feelings. I let myself feel them. It’s like therapy.”

Ostrander has lived in Willits for nearly 50 years and belongs to a men’s group and a couples’ group that’s been meeting for 20 years. He’s in remarkably good health and in close touch with his three adult children, who live within easy driving distance.

“The hard part of living alone is missing Cindy,” he told me. “The good part is the freedom to do whatever I want. My goal is to live another 20 to 30 years and become a better artist and get to know my kids when they get older.”

The Rev. Johnny Walker, 76, lives in a low-income apartment building in a financially challenged neighborhood on Chicago’s West Side. Twice divorced, he’s been on his own for five years. He, too, has close family connections. At least one of his several children and grandchildren checks in on him every day.

Walker says he had a life-changing religious conversion in 1993. Since then, he has depended on his faith and his church for a sense of meaning and community.

“It’s not hard being alone,” Walker said when I asked whether he was lonely. “I accept Christ in my life, and he said that he would never leave us or forsake us. When I wake up in the morning, that’s a new blessing. I just thank God that he has brought me this far.”

Waldinger recommended that men “make an effort every day to be in touch with people. Find what you love — golf, gardening, birdwatching, pickleball, working on a political campaign — and pursue it,” he said. “Put yourself in a situation where you’re going to see the same people over and over again. Because that’s the most natural way conversations get struck up and friendships start to develop.”

A man in a salmon colored sweater is seated beside a blonde woman, resting her head on his shoulders
Art Koff’s wife, Norma, died last year. Racked by grief and with little desire to eat, Koff lost 45 pounds. Though he had many friends and loving family, “nothing is of interest to me any longer,” Koff said in January. He died a few days later. (Alexander Koff)

Rousseau, the retired South Carolina doctor, said he doesn’t think about the future much. After feeling lost for several years, he moved across the country to Jackson, Wyoming, in the summer of 2023. He embraced solitude, choosing a remarkably isolated spot to live — a 150-square-foot cabin with no running water and no bathroom, surrounded by 25,000 undeveloped acres of public and privately owned land.

“Yes, I’m still lonely, but the nature and the beauty here totally changed me and focused me on what’s really important,” he told me, describing a feeling of redemption in his solitude.

Rousseau realizes that the death of his parents and a very close friend in his childhood left him with a sense of loss that he kept at bay for most of his life. Now, he said, rather than denying his vulnerability, he’s trying to live with it. “There’s only so long you can put off dealing with all the things you’re trying to escape from.”

It’s not the life he envisioned, but it’s one that fits him, Rousseau said. He stays busy with volunteer activities — cleaning tanks and running tours at Jackson’s fish hatchery, serving as a part-time park ranger, and maintaining trails in nearby national forests. Those activities put him in touch with other people, mostly strangers, only intermittently.

What will happen to him when this way of living is no longer possible?

“I wish I had an answer, but I don’t,” Rousseau said. “I don’t see my daughters taking care of me. As far as someone else, I don’t think there’s anyone else who’s going to help me.”

A man walks across a wooden bridge over a river
Paul Rousseau at a fish hatchery in Jackson, Wyoming. “Yes, I’m still lonely, but the nature and the beauty here totally changed me,” he said. (Amber Baesler for ºÚÁϳԹÏÍø News)

We’re eager to hear from readers about questions you’d like answered, problems you’ve been having with your care, and advice you need in dealing with the health care system. Visit  to submit your requests or tips.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

This <a target="_blank" href="/aging/older-men-connections-isolation-loneliness-navigating-aging/">article</a&gt; first appeared on <a target="_blank" href="">KFF Health News</a> and is republished here under a <a target="_blank" href=" Commons Attribution-NonCommercial-NoDerivatives 4.0 International License</a>.<img src="/wp-content/uploads/sites/8/2023/04/kffhealthnews-icon.png?w=150&quot; style="width:1em;height:1em;margin-left:10px;">

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Historic Numbers of Americans Live by Themselves as They Age /aging/going-it-alone-americans-aging-by-themselves-support-networks-children/ Tue, 17 Sep 2024 09:00:00 +0000 Gerri Norington, 78, never wanted to be on her own as she grew old.

But her first marriage ended in divorce, and her second husband died more than 30 years ago. When a five-year relationship came to a close in 2006, she found herself alone — a situation that has lasted since.

“I miss having a companion who I can talk to and ask ‘How was your day?’ or ‘What do you think of what’s going on in the world?’” said Norington, who lives in an apartment building for seniors on the South Side of Chicago. Although she has a loving daughter in the city, “I don’t want to be a burden to her,” she said.

Norington is part of a large but often overlooked group: the more than 16 million Americans living alone while growing old. Surprisingly little is known about their experiences.

This slice of the older population has significant health issues: Nearly 4 in 10 seniors living alone have vision or hearing loss, difficulty caring for themselves and living independently, problems with cognition, or other disabilities, according to a KFF analysis of 2022 census data.

If help at home isn’t available when needed — an altogether too common problem — being alone can magnify these difficulties and contribute to worsening health.

Studies find that seniors on their own are at higher risk of becoming isolated, depressed, and inactive, having accidents, and neglecting to care for themselves. As a result, they tend to be hospitalized more often and suffer earlier-than-expected deaths.

Getting medical services can be a problem, especially if older adults living alone reside in rural areas or don’t drive. Too often, experts observe, health care providers don’t ask about older adults’ living situations and are unaware of the challenges they face.

***

During the past six months, I’ve spoken to dozens of older adults who live alone either by choice or by circumstance — most commonly, a spouse’s death. Some have adult children or other close relatives who are involved in their lives; many don’t.

In lengthy conversations, these seniors expressed several common concerns: How did I end up alone at this time of life? Am I OK with that? Who can I call on for help? Who can make decisions on my behalf if I’m unable to? How long will I be able to take care of myself, and what will happen when I can’t?

This “gray revolution” in Americans’ living arrangements is fueled by longer life spans, rising rates of divorce and childlessness, smaller families, the geographic dispersion of family members, an emphasis on aging in place, and a preference for what Eric Klinenberg, a professor of sociology at New York University, calls “intimacy at a distance” — being close to family, but not too close.

The most reliable, up-to-date data about older adults who live alone comes from the U.S. Census Bureau. According to its 2023 Current Population Survey, about 28% of people 65 and older live by themselves, including slightly fewer than 6 million men and slightly more than 10 million women. (The figure doesn’t include seniors living in institutions, primarily assisted living and nursing homes.)

By contrast, 1 in 10 older Americans lived on their own in 1950.

A senior man in a blue button up shirt stands in front of a building a bush with red flowers
Ken Elliott, a retired psychology professor, lives by himself in a house in Mount Vernon, Maine. His only living relative is a brother in California. Elliott is thinking about how to put together a team of people who can help him age in place. “Aging without a mythic family support system — which everyone assumes people have — is tough for everybody,” Elliott says. (Ken Elliott)
A senior woman in a teal shirt and white shorts sits on a black couch
“I like being alone better than I like being in relationships,” says Janice Chavez of Denver. “I don’t have to ask anybody for anything. If I want to sleep late, I sleep late. If I want to stay up and watch TV, I can. I do whatever I want to do. I love the independence and the freedom.” (Judith Graham for ºÚÁϳԹÏÍø News)

This is, first and foremost, an older women’s issue, because women outlive men and because they’re less likely to remarry after being widowed or divorcing. Twenty-seven percent of women ages 65 to 74 live alone, compared with 21% of men. After age 75, an astonishing 43% of women live alone, compared with only 24% for men.

The majority — 80% — of people who live alone after age 65 are divorced or widowed, twice the rate of the general population, according to KFF’s analysis of 2022 census data. More than 20% have incomes below $13,590, the federal poverty line in 2022, while 27% make between that and $27,180, twice the poverty level.

***

Of course, their experiences vary considerably. How older adults living alone are faring depends on their financial status, their housing, their networks of friends and family members, and resources in the communities where they live.

Attitudes can make a difference. Many older adults relish being independent, while others feel abandoned. It’s common for loneliness to come and go, even among people who have caring friends and family members.

“I like being alone better than I like being in relationships,” said Janice Chavez of Denver, who said she’s in her 70s. “I don’t have to ask anybody for anything. If I want to sleep late, I sleep late. If I want to stay up and watch TV, I can. I do whatever I want to do. I love the independence and the freedom.”

Chavez is twice divorced and has been on her own since 1985. As a girl, she wanted to be married and have lots of kids, but “I picked jerks,” she said. She talks to her daughter, Tracy, every day, and is close to several neighbors. She lives in the home she grew up in, inherited from her mother in 1991. Her only sibling, a brother, died a dozen years ago.

In Chicago, Norington is wondering whether to stay in her senior building or move to the suburbs after her car was vandalized this year. “Since the pandemic, fear has almost paralyzed me from getting out as much as I would like,” she told me.

She’s a take-charge person who has been deeply involved in her community. In 2016, Norington started an organization for single Black seniors in Chicago that sponsored speed dating events and monthly socials for several years. She volunteered with a local medical center doing outreach to seniors and brought health and wellness classes to her building. She organized cruises for friends and acquaintances to the Caribbean and Hawaii in 2022 and 2023.

Now, every morning, Norington sends a spiritual text message to 40 people, who often respond with messages of their own. “It helps me to feel less alone, to feel a sense of inclusion,” she said.

A senior man wearing glasses, a black beret, and a black sweater sits at a table, a cup of black coffee is in front of him
Lester Shane lives alone in an 11-by-14-foot studio apartment in New York City. “There are days when I’m carrying my groceries up three flights of stairs when I think, ‘This is really hard,’” Shane says. (Judith Graham for ºÚÁϳԹÏÍø News)

In Maine, Ken Elliott, 77, a retired psychology professor, lives by himself in a house in Mount Vernon, a town of 1,700 people 20 miles northwest of the state capital. He never married and doesn’t have children. His only living relative is an 80-year-old brother in California.

For several years, Elliott has tried to raise the profile of solo agers among Maine policymakers and senior organizations. This began when Elliott started inquiring about resources available to older adults living by themselves, like him. How were they getting to doctor appointments? Who was helping when they came home from the hospital and needed assistance? What if they needed extra help in the home but couldn’t afford it?

To Elliott’s surprise, he found this group wasn’t on anyone’s radar, and he began advocating on solo agers’ behalf.

Now, Elliott is thinking about how to put together a team of people who can help him as he ages in place — and how to build a stronger sense of community. “Aging without a mythic family support system — which everyone assumes people have — is tough for everybody,” Elliott said.

In Manhattan, Lester Shane, 72, who never married or had children, lives by himself in an 11-by-14-foot studio apartment on the third floor of a building without an elevator. He didn’t make much money during a long career as an actor, a writer, and a theater director, and he’s not sure how he’ll make ends meet once he stops teaching at Pace University.

“There are days when I’m carrying my groceries up three flights of stairs when I think, ‘This is really hard,’” Shane told me. Although his health is pretty good, he knows that won’t last forever.

“I’m on all the lists for senior housing — all lottery situations. Most of the people I’ve talked to said you will probably die before your number comes up,” he said with mordant humor.

Then, Shane turned serious. “I’m old and getting older, and whatever problems I have now are only going to get worse,” he said. As is the case for many older adults who live alone, his friends are getting older and having difficulties of their own.

The prospect of having no one he knows well to turn to is alarming, Shane admitted: “Underneath that is fear.”

Kate Shulamit Fagan, 80, has lived on her own since 1979, after two divorces. “It was never my intention to live alone,” she told me in a lengthy phone conversation. “I expected that I would meet someone and start another relationship and somehow sail off into the rest of my life. It’s been exceedingly hard to give up that expectation.”

When I first spoke to Fagan, in mid-March, she was having difficulty in Philadelphia, where she’d moved two years earlier to be close to one of her sons. “I’ve been really lonely recently,” she told me, describing how difficult it was to adjust to a new life in a new place. Although her son was attentive, Fagan desperately missed the close circle of friends she’d left behind in St. Petersburg, Florida, where she’d lived and worked for 30 years.

Four and a half months later, when I called Fagan again, she’d returned to St. Petersburg and was renting a one-bedroom apartment in a senior building in the center of the city. She’d celebrated her birthday there with 10 close friends and was meeting people in her building. “I’m not completely settled, but I feel fabulous,” she told me.

What accounted for the change? “Here, I know if I want to go out or I need help, quite a few people would be there for me,” Fagan said. “The fear is gone.”

As I explore the lives of older adults living alone in the next several months, I’m eager to hear from people who are in this situation. If you’d like to share your stories, please send them to khn.navigatingaging@gmail.com.

ºÚÁϳԹÏÍø News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF—an independent source of health policy research, polling, and journalism. Learn more about .

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