Here鈥檚 something else to consider in the definition of what it means to be an American: Being a caregiver for an elderly or disabled loved one.
A new study says almost one out of three adults in the U.S. currently serves as a caregiver. The time and energy they put into caregiving becomes like an unpaid job.
On average, they spend about 19 hours a week providing care, doing everything from bathing and dressing an elderly parent or loved one to balancing a checkbook or doing household chores.
鈥淭his is essentially a half-time job,鈥� says of the AARP. The AARP and the National Alliance for Caregiving sponsored the survey, called , with funding from the MetLIfe Foundation. (The MetLife Foundation also underwrites reporting on aging at NPR.) Researchers interviewed nearly two thousand caregivers.
Many of the results of the survey are similar to those from earlier versions in and 1999. Two-thirds are women. The average age is about 48. Almost all鈥�86 percent鈥揷are for a relative. Most often, 36 percent of the time, it鈥檚 for a parent. On average, caregivers have been providing care for 4.6 years, and three in ten report doing so for five years or more.
Ginzler says one of the biggest changes to show up in the survey this year is just how much caregiving can interfere with regular work. 鈥淢aking accommodations in the workplace has increased in several ways,鈥� she says. 鈥淚n most cases, two-thirds of them, means they either go in late, leave early or take time off.鈥�
In addition, large numbers said they鈥檝e reduced work hours or taken a less demanding job (12 percent); turned down a promotion (6 percent), lost job benefits (6 percent), taken early retirement (3 percent) or given up work entirely (9 percent) to care for a loved one.
And 20 percent鈥搇ike 鈥揾ave had to take a leave of absence.
In 2001, Ballweg was working in New York City as a flight attendant. But back home in Wisconsin, her father had Parkinson鈥檚 Disease聽and her mother was struggling to take care of聽him. So she closed down her apartment and drove back home and moved in with her parents.
She took a six-month leave of absence from her job. When it was up, her parents still needed her. So she cut her work to part time, and commuted back and forth from Wisconsin.
Now, it鈥檚 been five years since her father died. But her mother developed Parkinson鈥檚, too. So Ballweg keeps her part-time hours for the airline. She鈥檒l take a three-day trip to Cairo or Capetown. Then come home to Wisconsin for a week to cook and care for her mother.
鈥淚t鈥檚 the thing I鈥檓 most proud of,鈥� she says, 鈥淚鈥檓 really proud of the way I鈥檝e taken care of my Mom and Dad.鈥�
A few years ago, Ballweg鈥檚 sister moved back to Wisconsin, too, and she helps some. That鈥檚 one of the fastest growing trends: As families try to avoid expensive care like assisted living, more members of a family help out to provide unpaid assistance.
Most people in the survey say they don鈥檛 consider caregiving a hardship. The longer a person has been providing care, the more likely he or she is to report being in fair or poor health. That came to 23 percent of those providing care for five years or more. But it was striking that, overall, 57 percent of caregivers say their health is excellent or very good.
But large numbers feel isolated. More than half, 53 percent, say their caregiving responsibilities take away time from friends and other family. And they鈥檙e the ones who are most likely to say they are emotionally stressed.
This was the first time the survey asked about caregiving for disabled children. And that turns out to be a large proportion of the total: About one out of 7. And while most caregivers for the elderly said it was very or somewhat easy to coordinate health care for their loved ones, that wasn鈥檛 true for those who provided care for disabled children. For them, 40 percent said it was at least somewhat difficult to coordinate care, including care at home and school.