Readers and Tweeters Defend the Rights of Adults With Disabilities
ϳԹ News gives readers a chance to comment on a recent batch of stories.
Disabilities
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Some Private Companies Charge Hefty Fees to Help Veterans With Disability Claims
Unaccredited companies promise to help veterans file for disability benefits. But unlike the thousands of service representatives who have been vetted and approved by the Department of Veterans Affairs to provide aid, these “medical consultants” or “coaches” operate with no restrictions on how much they can charge.
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Disability Rights Groups Sue to Overturn California’s Physician-Assisted Death Law
Disability rights advocates and two individuals with disabilities sued Tuesday to overturn the state's physician-assisted death law, arguing it is unconstitutional, violates the Americans with Disabilities Act, and makes it too easy for people with terminal diseases whose deaths aren't imminent to kill themselves with a doctor's help.
By Don Thompson -
People With Down Syndrome Are Living Longer, but the Health System Still Treats Many as Kids
The median life expectancy for a U.S. baby born with Down syndrome jumped from about four years in 1950 to 58 years in the 2010s. That’s largely because they no longer can be denied lifesaving care, including surgeries for heart defects. But now, aging adults with Down syndrome face a health system unprepared to care for them.
By Tony Leys -
For Young People on Medicare, a Hysterectomy Sometimes Is More Affordable Than Birth Control
While Medicare was designed as health insurance for those 65 and older, it also covers people with disabilities who are young enough to still get pregnant. Yet they often struggle to get their birth control covered and end up with large medical bills — or instead opt for hysterectomies or tubal ligations, which Medicare sometimes will cover.
By Gina Jiménez -
The Disability Tax: Medical Bills Remain Inaccessible for Many Blind Americans
Health insurers and health care systems across the country are violating disability rights laws by sending medical bills that blind and visually impaired people cannot read, a KHN investigation has found. By hindering the ability of blind Americans to know what they owe, some bills get sent to debt collections.
By Lauren Weber and Hannah Recht -
‘Impending Intergenerational Crisis’: Americans With Disabilities Lack Long-Term Care Plans
Many Americans with intellectual and developmental disabilities do not have long-term plans for when family members can no longer care for them. Families, researchers, and advocates worry that has set the stage for a crisis in which people with disabilities could end up living in institutional settings.
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People With Long Covid Face Barriers to Government Disability Benefits
Some people with long covid have fallen through the cracks of the government’s disability system, which was time-consuming and difficult to navigate even before the pandemic.
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Blind to Problems: How VA’s Electronic Record System Shuts Out Visually Impaired Patients
Veterans Affairs’ electronic health records aren’t friendly to blind- and low-vision users, whether they’re patients or employees. It’s a microcosm of America’s health care system.
By Darius Tahir -
Say What? Hearing Aids Available Over-the-Counter for as Low as $199, and Without a Prescription
The cheaper over-the-counter aids are for adults with mild to moderate hearing loss — a market of tens of millions of people, many of whom have until now been priced out because prescription devices can cost thousands of dollars.
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KHN’s ‘What the Health?’: Finally Fixing the ‘Family Glitch’
The Biden administration has decided to try to fix the so-called “family glitch” in the Affordable Care Act without an act of Congress. The provision has prevented workers’ families from getting subsidized coverage if an employer offer is unaffordable. Meanwhile, Medicare’s open enrollment period begins Oct. 15, and private Medicare Advantage plans are poised to cover more than half of Medicare’s 65 million enrollees. Margot Sanger-Katz of The New York Times, Joanne Kenen of the Johns Hopkins Bloomberg School of Public Health and Politico, and Rachel Cohrs of Stat join KHN’s Julie Rovner to discuss these topics and more. Plus, for extra credit, the panelists recommend their favorite health policy stories of the week they think you should read.
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A Disability Program Promised to Lift People From Poverty. Instead, It Left Many Homeless.
A federal disability program meant to provide basic income for people unable to work has left many of its recipients homeless. Advocates for the poor say the crisis is growing worse as rents rise and Congress decides whether to make changes to the program that would affect millions of people.
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As State Institutions Close, Families of Longtime Residents Face Agonizing Choices
Iowa, under federal pressure to improve care for people with intellectual or developmental disabilities, is set to join 45 other states that have closed most or all of their state institutions for such residents.
By Tony Leys -
Journalists Investigate Private Equity, Medical Debt, and Mental Health Care
KHN and California Healthline staff made the rounds on national and local media this week to discuss their stories. Here’s a collection of their appearances.
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Long Wait for Justice: People in Jail Face Delays for Mental Health Care Before They Can Stand Trial
People in jail who have serious mental illness and cannot stand trial because of their condition are waiting months, or even more than a year, to get into their state psychiatric hospitals.
By Andy Miller and Rebecca Grapevine -
Despite a First-Ever ‘Right-to-Repair’ Law, There’s No Easy Fix for Wheelchair Users
Colorado lawmakers approved a measure that will make it easier for people to fix their power wheelchairs when they wear out or break down, but arcane regulations and manufacturers create high hurdles for nationwide reform.
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Readers and Tweeters Sound Alarm Over Nurse’s Homicide Trial
KHN gives readers a chance to comment on a recent batch of stories.
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Refurbished Walkers and Wheelchairs Fill Gaps Created by Supply Chain Problems
Loan closets are playing an important role as supply chain issues and the rising price of aluminum have led to shortages in medical equipment such as wheelchairs, walkers, crutches, and knee scooters.
By Kate Ruder -
Journalists Recap Coverage of the Ongoing Pandemic and Lead Risks in Schools’ Drinking Water
KHN and California Healthline staff made the rounds on national and local media this week to discuss their stories. Here’s a collection of their appearances.
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Letters to the Editor
Readers and Tweeters Remain Vigilant on Masking and Billing
KHN gives readers a chance to comment on a recent batch of stories.
By Terry Byrne